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GlassFullGal
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For Reference
NASEM: consensus study report connective tissue + disability
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The U.S. Social Security Administration has requested the National Academies of Sciences, Engineering, and Medicine establish an ad hoc committee to review certain heritable conditions related to connective tissues, including but not necessarily limited to Ehlers-Danlos syndrome and Marfan syndrome. The Committee will use published evidence and professional experience to develop a report that will examine the diagnosis, treatment, and prognosis of the selected conditions, as well as levels of associated functional limitation, in adults and children in the U.S. population.
Reflections on Humanity
All lives can’t matter, until we can fully embrace unconditional acceptance.
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This has been a really hard thing for me to write. I know my communication is not going to be perfect. I also know, I can’t leave this…
GlassFullGal | Substack
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Environment to Thrive Enthusiast™ * speaker + storyteller + supporter. * producer of possibility | poet for humanity + healthcare
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Bluesky
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Environment to Thrive Enthusiast™ • speaker + storyteller + supporter • producer of possibility • poet for humanity + healthcare
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144 Followers • 0 Threads • Allied Health Professional Reimagining + reclaiming life Environment to Thrive Enthusiast™. See the latest conversations with @glassfullgal.
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