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A Qualitative Study of Health Care Providers' Perceptions and Experiences of Working Together To Care For Children With Medical Complexity (CMC)

This document summarizes a qualitative study exploring the perceptions and experiences of 103 health care providers in caring for children with medical complexity (CMC) across tertiary, secondary, and primary care settings in Australia. The providers expressed concerns about families' capacity to navigate the complex healthcare system, which was impacted by the children's medical complexity and families' psychosocial complexity. Providers also reported a lack of capacity in terms of their own skills, time, and availability to manage CMC cases. These issues were exacerbated by a fragmented healthcare system with limited communication among providers. The study highlights the need to understand and address challenges faced by providers in order to design integrated care models for CMC, through adequate training, additional resources, improved coordination and

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Lindon Jay Encluna
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60 views2 pages

A Qualitative Study of Health Care Providers' Perceptions and Experiences of Working Together To Care For Children With Medical Complexity (CMC)

This document summarizes a qualitative study exploring the perceptions and experiences of 103 health care providers in caring for children with medical complexity (CMC) across tertiary, secondary, and primary care settings in Australia. The providers expressed concerns about families' capacity to navigate the complex healthcare system, which was impacted by the children's medical complexity and families' psychosocial complexity. Providers also reported a lack of capacity in terms of their own skills, time, and availability to manage CMC cases. These issues were exacerbated by a fragmented healthcare system with limited communication among providers. The study highlights the need to understand and address challenges faced by providers in order to design integrated care models for CMC, through adequate training, additional resources, improved coordination and

Uploaded by

Lindon Jay Encluna
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© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
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A Qualitative Study of Health Care Providers’ Perceptions and Experiences

of Working together to care for Children with Medical Complexity (CMC)


Lisa Altman,1 Yvonne Zurynski,2 Christie Breen,1 Tim Hoffmann,1 and Susan
Woolfendencorresponding author1,3

BMC Health Serv Res. 2018; 18: 70.

Published online 2018 Jan 31. doi: 10.1186/s12913-018-2857-8

Abstract

Children with medical complexity (CMC) have a wide range of long term health problems and
disabilities that have an adverse impact on their quality of life. They have high levels of family
identified health care needs and health care utilisation. There is no Australian literature on the
experiences of health care providers working in the Australian tertiary, secondary and primary health
care system, whilst managing CMC. This information is essential to inform the design of integrated
health care systems for these children. We address this knowledge gap by exploring the perceptions
and experiences of health care providers on the provision of health care for CMC aged 0 to 18 years.

A qualitative research study was undertaken. Stakeholder forums, group and individual in depth
interviews were undertaken using a semi-structured interview guide. The stakeholder forums were
audio recorded and transcribed verbatim. Field notes of the stakeholder forums, group and individual
interviews were taken. Inductive thematic analysis was undertaken to identify key themes.

One hundred and three providers took part in the stakeholder forums and interviews across 3 local
health districts, a tertiary paediatric hospital network, and primary health care organisations.
Providers expressed concern regarding family capacity to negotiate the system, which was impacted
by the medical complexity of the children and psychosocial complexity of their families. Lack of health
care provider capacity in terms of their skills, time and availability to manage CMC was also a key
problem. These issues occurred within a health system that had impaired capacity in terms of
fragmentation of care and limited communication among health care providers.

When designing integrated care models for CMC, it is essential to understand and address the
challenges experienced by their health care providers. This requires adequate training of providers,
additional resources and time for coordination of care, improved systems of communication among
services, with timely access to key information for parents and providers.

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