110 A Midterm Notes
110 A Midterm Notes
• Nurses should practice to the full extent of their education and training.
• Nurses should achieve higher levels of education and training through an improved
educational system that promotes seamless academic progression.
• Nurses should be full partners, with physicians and other healthcare professionals, in
re-designing healthcare in the United States.
• Effective workforce planning and policy-making require better data collection and an
improved information infrastructure
Since then, many efforts have been made by nursing professional organizations and the
AACN to revise the nursing curriculum to be aligned with the IOM competencies. Quality
and Safety Education for Nurses (QSEN) The overarching goal of the three phases of the
QSEN project, which was supported by the Robert Wood Johnson Foundation (RWJF), is to
address the competencies necessary to continuously improve the quality and safety of the
healthcare systems in which they work (Cronenwett et al., 2007;
Quality and Safety Education for Nurses [QSEN], 2010).
Phase I of the project identified six competencies that needed to be developed during pre-
licensure nursing education The group also proposed clarified competencies in the areas of
knowledge, skills, and attitudes (KSAs). Phase II work of QSEN was focused on
competencies for graduate and advanced practice nurses (APNs). The QSEN faculty
members collaborated with APNs who practiced in direct patient care and worked on the
development of standards of practice, accreditation of educational programs, and
certification (Cronenwett et al., 2009).
The workgroups that participated in Phase II generated KSAs for graduate-level education.
Additionally, in Phase III, the AACN worked on developing the capacity of faculty engaged in
pre-licensure nursing education to mentor their colleague faculty integration of the evidence
based content on the six QSEN competencies (QSEN, 2012). Phase IV supports Institute of
Medicine’s recommendation increasing number of nurses with advanced degree. These
efforts are being led by the Tri-Council for Nursing, consisting of the American Association
of Colleges of Nursing, National League for Nursing, American Nurses Association, and the
American Organization of Nurse Executives (AONE).
The IOM/QSEN competencies and the pre-licensure KSAs are embedded in the new AACN
Essentials for nursing education (Cronenwett, Sherwood, & Gelmon, 2009; Cronenwett et
al., 2009; Dycus & McKeon, 2009).
The American Association of Colleges of Nursing Essentials for Nursing
In response to the urgent calls to transform healthcare delivery and to better prepare
today’s nurses for professional practice, the AACN convened a task force on essential
patient safety competencies in 2006 (AACN, 2006b). The taskforce recommended specific
competencies that should be achieved by professional nurses to ensure high-quality and
safe patient care.
Those competencies were identified under the following areas:
(1) critical thinking;
(2) healthcare systems and policy;
(3) communication;
(4) Illness and Disease Management;
(5) ethics; and
(6) information and healthcare technologies.
Since then, the AACN revised the Essentials of Baccalaureate Education for Professional
Nursing Practice in 2008 (AACN, 2008).
In regard to the essentials for graduate programs, the AACN made a decision to migrate
advanced practice nursing programs (APNs) from the master’s level to the doctorate level
(doctor of nursing practice [DNP] program) by the year 2015 (AACN, 2014). Under this
decision, many master’s programs that prepare advanced practice registered nurses (APRNs)
have already transitioned or in the process of making transition. The Essentials of Doctoral
Education for Advanced Nursing Practice were developed in 2006 (AACN, 2006a) and the
informatics competency is one of the essentials for this education program. This has a major
impact on education at the graduate level. Some non-APRN master’s speciality programs
(e.g., informatics, healthcare leadership and administration, and community-health nursing)
still maintain master’s program. The essentials for master’s education were revised in 2011
(AACN, 2011). Among various changes regarding essentials in nursing education since 2001,
major emphasis has been on patient safety and healthcare IT. The major focus of this
chapter is to discuss nursing curriculum from the context of HIT.
Technology Informatics Guiding Educational Reform (TIGER) Initiative
The recent Technology Informatics Guiding Educational Reform (TIGER) Initiative epitomizes
nurses’ efforts to translate high-level initiatives on nursing education reform to a practice
level (Hebda & Calderone, 2010; TIGER, 2014a; TIGER, 2014b). TIGER’s aim is to fully
engage practicing nurses and nursing students in the electronic era of healthcare. TIGER’s
goal is to create and disseminate action plans that can be duplicated within nursing and
other multi-disciplinary healthcare training and workplace settings. In Phase I of the TIGER
summit, stakeholders from various fields, including nursing practice, education, vendors, and
government agencies, participated in the discussions, and the TIGER team developed a 10-
year vision and three-year action plan for transforming nursing practice and education
(TIGER, 2014a).
In Phase II, TIGER formalized cross-organizational activities/action steps into nine
collaborative TIGER teams (TIGER, 2009).
Currently TIGER is working on Phase III that integrates the TIGER recommendations into the
nursing community as well as other disciplines across the continuum of care. Some of the
important activities include the development and implementation of a Virtual Learning
Environment Center (VLE) and developing another invitational summit (TIGER, 2014b). The
VLE is an interactive Web-based learning environment where the learners can develop
knowledge and skills in the area health information technology.
INFORMATICS COMPETENCIES FOR PRACTICING CLINICIANS
The essentials and competencies recommended by the IOM, AACN, QSEN, and TIGER
address essential competencies that need to be addressed in educational programs. A great
deal of effort also has been made in developing more executable competency lists that can
be used in practice settings. American Nurses Association Nursing Informatics. The Scope
and Standard of Practice (ANA, 2008) addressed an NI-specific domain.
As discussed earlier, nursing informatics is an essential component for any nurse.
The competencies contained in the NI Scope and Standards matrix were categorized into
three overall areas:
(1) computer literacy,
(2) information literacy, and
(3) professional development/leadership (ANA, 2008).
Computer literacy addresses competencies in the area of the psychomotor use of computers
and other technological equipment. Information literacy competencies are related to the
ability to identify a need for information as well as the ability to find, evaluate, organize, and
use the information effectively. Professional development and leadership competencies
address ethical, procedural, safety, and management issues for informatics solutions in
nursing practice, education, research, and administration The competency framework
includes all nurses with different levels of NI education (e.g., nurses with and without
graduate-level NI specialty education) and different NI functional areas (e.g., analysis,
consultation).
The categories of educational and functional roles within the competency matrix include:
• Beginning Nurse
• Experienced Nurse
• Informatics Specialist/Informatics Innovator
• Administration Analysis
• Compliance and Integrity Management
• Consultation
• Coordination
• Facilitation and Integration
• Development
• Educational and Professional Development
• Policy Development and Advocacy
• Research and Evaluation
• Integrated Areas
The ANA’s Nursing Informatics Scope and Standards Revision Workgroup is working on the
revision of the current Nursing Informatics Scope and Standard of Practice (ANA, 2014). The
public comment period for the draft version closed on January 17, 2014.
TIGER Informatics Competencies Collaborative Recommendations
Upon extensive review of the literature, the TIGER Informatics Competency Collaborative
(TICC) recommends specific informatics competencies for all practicing nurses and
graduating nursing students (TIGER Informatics Competencies Collaborative, 2014c).
The TIGER NI competencies model consists of the following three areas:
(1) basic computer competencies;
(2) information literacy; and
(3) information management. For the basic computer competencies, the TICC adopted the
European Computer Driving License (ECDL) competencies and made its recommendations.
The European Computer Driving License (ECDL)/International Computer Driving License
(ICDL) is an internationally recognized Information and Communication Technology and
digital literacy certification (The European Computer Driving Licence Foundation Ltd.,
2014b). The ECDL certification program was developed through the Task Force of the
Council of European Professional Informatics Societies in 1995. The new ECDL training
program includes various modules and the certificate program is run worldwide through a
network of Accredited Test Centres (ATCs) (The European Computer Driving Licence
Foundation Ltd., 2014a).The specific recommendations made by the TICC were based on
the old ECDL/ICDL Syllabus 5.0.
eHealth Literacy
One area that needs further discussion in the competencies addressed by the AACN
(American Nurses Association, 2008) and the TICC (TIGER Informatics Competencies
Collaborative, 2014) is eHealth literacy. Norman and Skinner (2006a) defined eHealth
literacy as “the ability to seek, find, understand, and appraise health information from
electronic sources and apply the knowledge gained to addressing or solving a health
problem” eHealth therefore requires combined literacy skills in several domains. Norman and
Skinner (2006b) suggest six domains of eHealth literacy: traditional literacy, information
literacy, media literacy, health literacy, computer literacy, and scientific literacy. With the
rapid growth in the use of eHealth at the global level, the concept of eHealth literacy has
become more important than previous times (Chan & Kaufman, 2011; Norman & Skinner,
2006a).
eHealth literacy is often discussed at the consumers’ level because consumers in the current
age can access a large amount of health information online and many of them may not be
prepared to locate the information they need or evaluate the quality of the information
found from different sources (Chan & Kaufman, 2011; Norman & Skinner, 2006b; Norman,
2011).
Although nurses have much knowledge in general health than the public, eHealth literacy is
also a concern for them. Unlike many younger generations, nurses who did not grow up with
technologies may spend less time exploring online health information and may be less
familiar with search functions. Considering the nurse’s role as an educator for consumers
and the heightened emphasis on evidence-based practice, nurses must be properly prepared
to be eHealth literate.
NURSING INFORMATICS AS A SPECIALTY PROGRAM AT THE GRADUATE LEVEL
The ANA defines Nursing informatics (NI) as:
“a specialty that integrates nursing science, computer science, and information science to
manage and communicate data, information, knowledge and wisdom in nursing practice. NI
supports consumers, patients, nurses, and other providers in their decision-making in all roles
and settings. This support is accomplished through the use of information structures,
information processes, and information technology” (ANA, 2008)
The NI Scope and Standards of Practice clearly differentiate between informatics nurse
specialists (INSs) and informatics nurses (INs). The INSs are those formally prepared at the
graduate level in informatics and INs are generalists who have gained on-the-job training in
the field but do not have the educational preparation at the graduate level in an informatics-
related area (ANA, 2008). With the national emphasis on HIT education, various types of
informatics-related educational programs are available at the graduate level, such as nursing
informatics, healthcare informatics, bio-medical informatics, etc. Most informatics
educational programs are moving toward online programs and/or hybrid (mainly online with
some face-to-face classes) programs.
The curriculum and credits vary a great deal depending on the program. The nursing
informatics field also has unique characteristics. For instance, unlike other clinical nurses, the
majority of the colleagues of the INSs are from other disciplines, such as computer science,
information management, business (vendors), or administrators. The roles the INSs assume
also vary (Sensmeier, 2007).
In a 2009 Informatics Nurse Impact Survey (N = 432) conducted by the Healthcare
Information and Management Systems Society (HIMSS), participants were asked to indicate
the roles that nurses play with regard to IT (HIMSS, 2009).The findings showed the following
results: user education (93%), system implementation (89%), user support (86%), workflow
analysis (84%), getting buy-in from end users (80%), system design (79%),
selection/placement of devices (70%), quality initiatives (69%), system optimization (62%),
system selection (62%), database management/reporting (53%) (Note: only includes roles
with greater than a 50% response rate).
In a subsequent 2011 Nursing Informatics Workforce Survey (N = 660) (HIMSS, 2011), the
majority of informaticians reported that their primarily work involves the area of systems
implementation (57%) and systems development (53%), followed by Quality initiatives (31%).
Additionally, recent scientific discoveries in biomedical informatics and genomics, as well as
the rapid growth in mHealth and eHealth, have made a significant impact on healthcare
informatics and the roles of nursing informatics specialists. These changes led to the revision
of the ANA’s Nursing Informatics Scope and Standards of practice (ANA, 2014).
The revision also addresses other recent trends in technology, such as knowledge
representation, tools to manage public health concerns, and nanotechnologies. Considering
these varying roles and areas of practice, it is logical that each program may have a different
emphasis or strength. Assurance of quality standards of each program, however, is
particularly concerning considering that there is no regulatory body or specialty organization
that could set standards for educational programs in nursing informatics.
CERTIFICATION IN NURSING INFORMATICS AND RELATED HIT
Currently the American Nurses Credentialing Center (ANCC), an accredited agency, offers
the generalist nursing informatics certification (RN-BC) (ANCC, 2014b). The minimum
academic degree required to take the examination for this certification is a bachelor’s or
higher degree in nursing or a bachelor’s degree in a relevant field. The test content outline
for the nursing informatics certification examination can be found on ANCC’s Web site
(http:// www.nursecredentialing.org/InformaticsTCOs) (ANCC, 2014c).
The main content as of October 2014 includes:
1. Foundations of Practice (71 items, 47.33%), which includes the Scope and
Standards of Informatics Practice, ethics, privacy and confidentiality, regulation
and policy, management of data, healthcare industry trends, team building,
conflict management, computer science, information science, cognitive science,
nursing science, testing and evaluation methodologies, workflow processing, and
theories that support the NI practice.
2. System Design Life Cycle (SDLC) (39 items, 26.00%) which includes the phases
and tasks contained within the SDLC process along with the NI leadership role in
managing the process.
3. Data Management and Healthcare Technology (40 items, 26.67%), which includes
the current evidence about data to knowledge, data mining, and management. As
discussed previously, nursing informaticians’ primary responsibilities vary a great
deal and their work environments also differ (e.g., hospitals, vendors, consulting
firms).
Each job or setting may require a different certificate, such as project manager, information
administrator. Based on the 2011 HIMSS Nursing Informatics Workforce Survey, 19% of the
respondents reported having a certificate in nursing informatics offered through the ANCC
(HIMSS, 2011). Many survey participants reported having a certificate(s) in other areas such
as Certified Professional in Healthcare Information & Management System (CPHIMS)
offered by HIMSS (HIMSS, n.d.).
INFORMATICS COMPETENCIES FOR FACULTY MEMBERS
In the past few years, there have been significant changes in nursing education. (AACN,
2008, 2011). Informatics competency has been addressed as a vital component in those
changes. IOM’s Future of Nursing report also emphasized that efficient management of data
and a robust informatics infrastructure are components in transforming the nursing
profession (IOM, 2010).
Additionally, the current emphasis on meaningful use of EHR demands that nurses be
competent in managing health data and information. These changes also require nursing
faculty member be competent in healthcare informatics. The majority of current nursing
faculty members also face challenge in a way instruction is delivered. Previously, most
nursing education was delivered via classroom face-to-face settings. However, with the
exponentially growing information communication technologies, more instruction is being
delivered using online format.
Current popularity with social networking programs has added additional complexity to the
current online learning environment. To address these pressing needs, the National League
for Nursing Issues call for Faculty Development and Curricular Initiatives in Informatics
(National League for Nursing, 2008) The RWJ also supported QSEN Phase IV specifically
focusing on the goal of building capacity for nursing faculty members who are competent in
the six QSEN competencies and to serve as peer mentor for other faculty members (QSEN,
2012). The AACN also plays a major role in building this capacity. For example, in 2012,
AACN sponsored the QSEN Nursing Informatics Deep Dive Workshop (DDW) in San
Francisco Bay Area to build develop, pilot, and evaluate a curriculum to improve the
informatics knowledge and competencies of nursing faculty and health system educators
who provide informatics training (AACN, 2012). All materials are available for use in the
classroom through the QSEN Web site.
Simulation-Based Learning
Use of high-fidelity simulation has become the gold standard in current nursing education
(Burns, O’Donnell, & Artman, 2010; Schiavenato, 2009). The purpose of simulation in clinical
settings is to replicate the important aspects of a clinical situation where students or
clinicians can work to gain knowledge and experience (Jeffries & Rogers, 2007; Nehring,
2009). Most nursing schools have multiple high-tech simulation labs including high fidelity
simulators. Those labs provide students with various simulated clinical settings. For instance,
the University Of Maryland School Of Nursing has an entire simulated hospital in its school
consisting of 24 labs including an operating suite, a community/home healthcare lab, and a
diagnostic laboratory.
To augment the simulation environment, some schools use an academic version of the EHR
system (AllBusiness.com, 2009; Borycki et al., 2009; Joe et al., 2009; Otto & Kushniruk,
2009). Implementing the EHR in simulation labs allows students to have an opportunity to
develop competencies in using HIT before they go into the clinical setting. In addition, most
EHRs have decision support systems which could significantly augment students’ learning.
When schools implement these academic EHR systems, they must have a thorough plan and
a multitude of resources. For instance, the school must have network infrastructures that
can support the program, and have a designated project manager who is familiar with system
deployment.
There will be a great deal of work in developing use cases and building tables in the system,
which also requires the clinical faculty members’ participation. It will be necessary to
educate faculty members about the system since they must be competent to teach classes
using the EHR. Policies and procedures for using the system within the lab must be
developed and clearly communicated to the students before the system is deployed. The
project manager must also consider various human factors and ergonomic issues, as well as
system characteristics (Cacciabue & Cacciabue, 2004; Nielsen, 1993).
Inter-disciplinary Collaboration
As emphasized by the NIH Roadmap initiative, the advancement of science can be made
more effective by combining inter-disciplinary knowledge and skills (National Institutes of
Health -Office of Portfolio Analysis and Strategic Initiatives, 2006). The recent NIH Clinical
Translational Science Awards (CTSAs) have stimulated collaboration among disciplines and
impacted both the clinicians’ and researchers’ paradigm in approaching research, practice,
and education. Most of the changes have been mainly addressed in research and science
fields thus far (Chesla, 2008; Sampselle, Pienta, & Markel, 2010; Woods & Magyary, 2010).
However, nursing education must embrace this initiative and prepare both our students and
clinicians. One example of an approach could involve EHRs. EHRs can be an excellent
communication and collaboration tool among inter-professional care providers in healthcare
settings. Class projects and papers that incorporate data and information from EHRs can
provide students the opportunity to exercise skill sets required for inter-disciplinary
collaboration which is an important competency within informatics. When a HIT system is
implemented in a hospital setting, various professionals (e.g., IT professionals, clinicians,
administrators, vendors, lawyers) have to work together as a team for a prolonged period,
and the system often affects many departments and professionals concurrently. Upon the
completion of system deployment, the systems will continue to require management and
upgrades. Learning about inter-disciplinary collaboration is critical in nursing education, and
is becoming more important as technology becomes more advanced and as healthcare
becomes more complex.
Informatics Competencies for Faculty Members
Innovative technologies in teaching and learning can produce optimal outcomes only when
the instructors are competent in using those technologies. Previously we discussed the
essential educational components needed to ensure nursing students’ and practicing nurses’
competencies in using healthcare information technologies and managing information.
Current students who grow up with technologies often outpace their faculty members in
using technologies (Curran, Sheets, Kirkpatrick, & Bauldoff, 2007). When faculty members
need to teach online class, they also have to learn about not only using technology but also
re-orient themselves to a whole new way of teaching the content. For instance, the way that
online students respond may be different from the students who take face-to-face classes.
Faculty members must be properly supported to fully adopt the newest technologies
(Griffin-Sobel et al., 2010). Some continuing education modalities for faculty members
include half-day workshops, short refresher courses before the beginning of each semester,
or online self-learning modules. If the school offers many online classes, a sufficient number
of instructional design specialists should be a part of the staff. Faculty members who teach
informatics must have a specific expertise in the field. With the heightened awareness of IT
in healthcare technologies and the revised essentials for the baccalaureate and the DNP
curriculums, increasing numbers of informatics classes are being required as core courses in
nursing programs. The AACN’s decision to migrate the ANP programs to the DNP level
further accelerates this need. However, there is a significant shortage of faculty members
who have an expertise in healthcare informatics and who can teach students. More
doctorally prepared informatics faculty members with a proper education/training are
needed in NI education.
1. “Make sure faculty understand that they are starting something new.”
2. “Teach your faculty to think about their course in a different way, to be ready to
do things differently.”
3. “Use your instructional designers. As the faculty member is developing the course
with the instructional designer, the designer should be on the lookout for time-
consuming approaches.”
4. “The more an administrator knows about the process of course development, the
better he/she can manage [the faculty workload issue].” (para. 9)
COURSE DEVELOPMENT
The use of the Web for courses can be divided into three categories: hybrid courses, Web-
enhanced face-to-face courses, and fully online courses. The selection of approach depends
on the needs of the organization, the nature of the content.
Learner Assessment in Online Courses
Assessment is an important aspect in the learning process. Assessment is defined as a means
to test and evaluate student performance and ensure that students meet the outcomes
designed for the course (Waterhouse, 2005). The assessment may take different forms, such
as:
• Online quizzes and exams.
• Self-assessment: Students assess their own learning as they progress through the
course.
• Online discussion: Students respond to questions, reply to peers messages, and
discuss course materials.
• Papers: Students submit research papers, or essays. Posting papers to the online
discussion forum can spark discussion. Rubrics provide guidelines and a method
for self-evaluation.
• Individual or collaborative projects: Students develop a project individually or as
members of a group by using clear directions and guidelines.
• Presentations: Synchronous communication systems can be used to make
presentations or even have debates. A student can use a whiteboard or show a
Web site they would like everyone to view while holding a live discussion.
• ePortfolio: It is an online application for collecting the student’s work that
demonstrates meaningful documentation of individual abilities. Electronic
portfolios can serve as a means to assess student’s ability over time, and if the
student has met each objective or learning outcome as determined by the
instructor or the academic program.
STUDENT SUPPORT
One of the most critical factors in a student’s success with online learning is student
support. Moore and Kearsley (2005) noted that the absence of student support could
drastically affect student retention, and tends to increase student frustration and feelings of
inadequacy, which in turn leads to the student dropping out of the program. Several
investigators have proposed a wide range of student support services that should help
students be successful. These services include precourse orientation (Nash, 2005), free
tutoring services (Raphael, 2006), and online technical support (Moore & Kearsley, 2002).
These academic services allow students to be familiar with the technology and improve
student-to-instructor and student-to-student communication.
The main goal is to increase students’ ease with the cyber environment and encourage
constant connection with their peers. In addition to academic support, services that focus on
students’ affairs are also important to success and retention. Services such as online library
resources (Gaide, 2004; Raphael, 2006), online advising (Herbert, 2006; Osika, 2006), and a
common course management system (Osika, 2006) could be part of an integrated student
support system aimed at making online learning exciting and successful.
Orientation to the Online Environment
Orientation programs designed to introduce new students to the online environment are
crucial to assure a smooth transition, especially for students without prior experience in
online learning. The goals of orientations and tutorials are to ensure that students are
familiar with the online environment and are aware of expectations. Free tutorials are also
helpful, especially with difficult or challenging tasks such as navigating the Web course
space, using new software packages and/or equipment, or performing technical procedures
(e.g., uploading a file to a Web site).
Communication and Flexibility
There are two basic types of Web-based communication:
To ensure effective communication, instructors must select the most appropriate tool for
the class. This will depend on accessibility to the technology and the levels of students’ skills.
Communication is strongly affected by course flexibility (due dates and/or assignment
submission). Building flexibility in the course structure allows the faculty to compensate for
unexpected technological problems, as well as provides opportunities to respond to student
feedback.
Accessibility in Online Learning
To avoid creating barriers in online learning, federal and state laws, and local guidelines and
policies for online learning such as Americans with Disabilities Act (ADA) and Rehabilitation
Act, require that the online learning should be accessible to the broadest range of possible
learners. Accessibility of content becomes a legal requirement in many situations. It is
important to present instructional content in a format that accommodates the diverse needs
and learning styles.
Some elements for accessibility include alternative text for images, appropriate color and
contrast, accessible and consistent navigation, closed captioning for audio/video materials.
Accessibility also applies to online testing. Students with disabilities can have many different
types of limitations that affect their abilities to take tests. These individuals who are
protected by disability legislation can ask for alternative format and extra time to take tests.
Students must apply for an “accommodation” through the university’s student services for
accommodations to be made by the school.
LEGAL, ETHICAL, AND COPYRIGHT ISSUES
The faculty is accountable for educational content they teach. However, accountability is
even more at the forefront of education at this time. Eaton (2011) defines accountability as
the “how and the extent to which higher education and accreditation accept responsibility
for the quality and results of their work and are openly responsive to constituents and the
public” (p. 8). The Higher Education Act, reauthorized in 2008, made additional demands on
accreditors to be more accountable and subsequent creation of rules during 2009 and 2010
expanding accountability expectations even more (Eaton, 2011). Legal concerns relate to
established laws associated with telecommunication technologies, whereas ethical concerns
relate to the rights and wrongs stemming from the values and beliefs of the various users of
the distance education system. Three major areas that are of concern regarding legal issues
include copyright protection, interstate commerce, and intellectual property. Privacy,
confidentiality, censorship, freedom of speech, and concern for control of personal
information continue to be as relevant today as in 1998 when Bachman and Panzarine
(1998) identified these cyber ethical issues.
Copyright Protection
Copyright is a category of intellectual property and refers to creations of the mind (World
Intellectual Property Organization, n.d.). According to the World Intellectual Property
Organization (WIPO) Web site (www.wipo.int/ policy/ed/sccr/)
The Standing Committee on Copyright and Related Rights (SCCR) is currently engaged in
discussion of:
• Limitations and Exceptions
• Broadcasting Organizations
This protection for Copyright is based on the Copyright Act of 1976, and was last amended
November, 1995 (World Intellectual Property Organization, n.d.). Copyright law protects
“works of authorship,” giving developers and publishers the right to control unauthorized
exploitation of their work (Radcliff & Brinson, 1999). Although there have been no new
federal laws since 1976 to address educational multimedia concerns, the Consortium of
College and University Media Centers has published the Fair Use Guidelines for Educational
Multimedia (Dalziel, 1996). When combining content such as text, music, graphics,
illustrations, photographs, and software it is important to avoid copyright infringement
(Radcliff & Brinson, 1999). Additionally, the Digital Millennium Copyright Act was passed in
October 1998. The UCLA Online Institute for Cyberspace Law and Policy lists the highlights
of the Digital Millennium Copyright Act at gseis.ucla.edu/iclp/ dmca1.htm and the U.S.
Copyright Office Summary can be located at www.copyright.gov/legislation/dmca.pdf. As
noted by the dates of citations here, regulations and legislative guidance seem to lag from
the technological changes incorporated within the online educational arena.
Intellectual Property
A common question by faculty is, “Who owns the course?” According to Kranch (2008) there
is a great deal of controversy over who owns academic coursework materials U.S. copyright
law is intended to provide ownership and control of what an individual has produced.
However, its relationship to faculty-produced work is not as clear. Although faculty may
own the materials they have developed for use in their online courses, it is always good to
have a memo of understanding documenting the specific use of the materials as well as the
accrued benefits (Billings & Halstead, 2009).
The issue of “work made for hire” is the point of controversy. According to the 2003 U.S.
Copyright Office document, as indicated by Kranch (2008), a “work made for hire” is defined
in the following ways:
The bottom line of this section is that faculty should know their employer’s policy pertaining
to intellectual property rights. Over the last several years, universities, government, and
private organizations have noted the need to clearly delineate their policies in this area. For
example, our school has an established university-wide committee providing advisory
opinions to the Provost on matters related to patentable discoveries and inventions, and/or
copyrightable material, which had been developed by University employees. MIT Open
Courseware (2010) is a free and open digital publication of educational material (http://
ocw.mit.edu/index.htm). However, there are specific guidelines and requirements for the
use of Open Courseware. Although Open Courseware is available to anyone, material used
in education from any Open Courseware participant is consistent with materials from any
university and/or faculty. Additional information on Open Courseware can be found at
http:// ocw.mit.edu/help/.
Extensive resources on intellectual property law and rights can be found at the following
sites:
Ethical behavior in the nursing profession has been established by groups such as the
American Nurses Association (ANA) in the Code of Ethics (ANA, 2001) and the American
Association of Colleges of Nursing’s (AACN, 2008) competencies for baccalaureate nursing
education. These nursing values and ethics are fundamental in practice decisions and are just
as applicable in nursing education, whether education be face to face or online. Mpofu (n.d.)
regards ethical considerations in online teaching as performing your work within the context
of professional practice and the confines of institutional regulations. However, over and
above professional and institutional ethics, nurse educators must contend with legal and
ethical issues that take on a new dimension when applied to online education. While issues
such as copyright, privacy, licensing, fair and acceptable use, and plagiarism are certainly not
unique to online education, they assume new dimensions and different proportions. Another
source for consideration with ethics issues can be found in Best Practice Strategies to
Promote Academic Integrity in Online Education (Version 2.0, June 2009)
(wiche.edu/attachment_library/Student_Authentication/ BestPractices.pdf).
EFFECTIVENESS OF ONLINE EDUCATION
Online learning for nursing courses is exploding. Advertisements about “new online
education for working professionals” certainly have appeal, capturing the attention of many
people seeking to fit further education into their busy schedules. Yet, there are still some
traditional students who do not pay attention to online education, there are still some
faculty who avoid the concept by raising questions of quality rather than exploring the
educational principles used in online learning, and there are still some who believe the only
“gold standard” of education continues to be the traditional classroom setting (Allen, Arnold,
& Armstrong, 2006).
Additionally, questions emerge concerning the validity of the courses: Is it really possible to
earn a degree while at home or in the work setting without driving long distances and sitting
in tedious lecture classes? Is the interaction with the faculty equal to the same interaction
that occurs in the classroom? Is this really applicable to clinical nursing? Overall, market-
driven demands of educational reform and creative, visionary faculty have moved online
learning, transforming both academic and continuing nursing education, by capturing new
types of educational experiences and innovative kinds of pedagogy (Allen & Seaman, 2010;
Allen, Arnold, & Armstrong, 2006).
The outcomes have been an empowerment of the nursing student and working professional
to have numerous important educational choices. Now, in addition to quality, the
educational decisions are often based on accessibility and the amount of time needed to
complete the course or program. Online learning offers more alternatives to accommodate
individual circumstances and educational needs. Now, it is becoming a commonly accepted
instructional method in higher education institutions, and the numbers of online courses are
constantly increasing to accommodate the large number of students enrolling. For the past
six years, online enrollment has grown at a greater rate than the total higher education
enrollment (Allen & Seaman, 2010). According to the Sloan Consortium Report (2013),
overall online enrollment increased to 7.1 million in 2013, with the majority of doctoral-
granting universities (80%) offering online courses or programs. In order to purport quality,
educational outcomes must be similar for both the on-campus and online learning students;
countless studies over at least three decades have documented this (Dede, 1990; Mahan &
Armstrong, 2003; Schlosser & Anderson, 1994).
Findings reflect that regardless of the delivery method, online learning students receive the
same grades or do better than those students receiving traditional instruction. Overall,
student evaluations are good to very good following online education activities. In essence,
good online education theory and good education theory are actually the same; the
education just transcends the barriers of time and space.
PROGRAM EVALUATION AND ACCREDITATION
Program evaluation is an ongoing process in online education and requires a framework for
evaluation to be adopted by the faculty, standards, and outcomes to be defined, as well as a
timeline for measurement of outcomes. Program evaluation focuses on review and
improvement. The need for curriculum revision, resources, and faculty and staff may
become apparent during this ongoing review process. Program evaluation allows educators
to facilitate meaningful change, while providing feedback. All program evaluation gathers
evidence for measurement against predetermined outcomes. The framework will provide
the steps to outcome attainment. With systematic program evaluation, revision decisions are
based on the evidence from findings rather than assumptions.
To obtain this evaluative data, program surveys by faculty, students, and administrators
should be completed and analyzed annually. Additionally, course surveys should be
completed by students at the end of each course. Regional accreditation agencies assist in
guiding programs for maintaining standards in program delivery, and regional credentials are
sought after by major colleges and universities. Regional accreditation is a continuous
improvement process involving the entire university or college. Many of the regional
accrediting agencies, such as the Southern Association of Colleges and Schools (SACS),
engage the college or university to pursue a continuous improvement process of self-
evaluation, reflection, and improvement for not only face-to-face learning but distance
learning as well (Southern Association of Colleges and Schools, 2010).
Other regional accrediting agencies providing excellent resources for online program
assessment and evaluation include Western Interstate Commission on Higher Education
(WICHE) and WICHE Cooperative for Educational Technologies (WCET), a division of
WICHE, providing good practices and policies to ensure the effective adoption and
appropriate use of technologies in teaching and learning online (wcet.wiche. edu/advance).
Accreditation agencies require that each facet of the online program be critically and
logically appraised to reflect the quality of the programmatic goals and outcomes designated
within the program. There is no one type of accreditation applied to online education. In
fact, there are several types of accreditations for different institutional statuses, and they
are categorized into regional, national, and professional accreditations (see Table 44.3).
STANDARDS FOR QUALITY IN ONLINE EDUCATION
To ensure the quality of online education, various organizations (Table 44.4) have recently
developed standards for this type of education. The main purpose of these standards is to
guide the development and evaluation of online learning programs offered through colleges
and universities.
FUTURE TRENDS
The future trends in online learning will be defined by student empowerment and
technological advancements. The population and student enrollments have grown
extensively during the last six years (Allen & Seaman, 2010) and it is anticipated that the
field of online education will witness a tremendous growth both in terms of quantity as well
as quality.
For example, Hodgins (2007) predicts that learning content will be customized for each
learner, rather than mass produced. In the future, data analytics will be used to identify
individual student learning needs and the role of faculty as mentors will be strengthened
(Johnson et al., 2013). Huge data sets will allow advisors to see academic risks in real time
and intervene with the student. By focusing on processes of actual cognitive development
Stanford University is researching new forms of assessment in order to measure twenty-first
century skills (Skiba, 2013). Additionally, immersive virtual learning environments tailored to
the learner’s desired competency set will emerge. Here the student will enter an immersive
virtual environment which transcend real world time and there be paired with virtual
teammates designed to enable the student to meet identified competencies (Dede, 2013).
The next apparent trend changing online learning is the advancement of technologies.
Gaming, learning analytics, and mobile applications are now the norm as well as tablet
computing and use of ebooks (Skiba, 2013). We now expect are tools to have geo-
everything and gesturebased computing through a tap or a swipe, but the future may bring
technology that allows computing through subtle body gestures with wearable computing
(Skiba, 2013). Along with the wearable technology, 3D printing will become commonplace
(Hidalgo, 2013). Futurists have been predicting the rise of the ubiquitous computing device
for years (Bull & Garofalo, 2006; Swan, Van ‘T Hooft, Kratcoski, & Schenker, 2007; Weiser,
1991). A ubiquitous device is one to which users have become so accustomed, they no
longer notice the device itself when they are using it. Instead, users tend to focus on what
they get from the device. One example of this in our life is the refrigerator.
We may open the door of the refrigerator, but often are thinking of the food we get from
the device, rather than the device itself. Some authors go even farther, defining the
ubiquitous device as a single device or service that takes care of all of our computing needs
(Pendyala & Shim, 2009). These computing devices will continue to be part of an exciting
new world for online learning opportunities. The 2013 Horizon Report by the New Media
Consortium described six technologies that universities will likely mainstream within the
next five years. One of these technologies is gesture-based computing, which is also called
Gesture Recognition. This refers to technology that recognizes and interprets the motions
and movements of its users. Instead of using the mouse or keyboard, the users employ
natural body movements to control the device, such as shaking, rotating, tilting, touching, or
moving the device in space. It is expected that in four to five years this type of technology
will emerge in educational settings and have a considerable impact on teaching and learning
(www.nmc.org/horizon (Links to an external site.)).
There will be more technologies that offer live interactive instruction. With all the growth in
online education, the need for effective course management systems will be ever more
crucial. Furthermore, technological advancements will also increase the need for developing
effective teaching strategies that exploit the capabilities of technology. Massively Open
Online Courses (MOOCs) will continue to explode as noted in the latest NMC Horizon
Report (Johnson et al., 2013).
And the movement on the horizon is for MOOCs to determine mechanisms for awarding
credit (Kolowich, 2013). Skiba (2014) recently noted students of the future will use mobile
devices more, but will also still value a mix of online and face-to-face learning environments
and although technology will enhance achievement of their learning goals students will
continue to value privacy. There is a limit to connectivity and students will continue to keep
academic and social lives in separate silos (Skiba, 2014).
INTRODUCTION
The Internet has revolutionized the computer and communications world like nothing
before. The Internet is at once a world-wide broadcasting capability, a mechanism for
information dissemination, and a medium for collaboration and interaction between
individuals and their computers without regard for geographic location (Leiner et al., 1997, p.
102). There is no doubt the Internet provided the necessary infrastructure to revolutionize
the way scientists and researchers from the worlds of academia, business, and government
could share data, interact, and collaborate with each other. But it was not until the
introduction of the World Wide Web that “everyday people” without computer
programming skills were enabled to reap the benefits of this revolution.
The Web not only changed how governments and businesses operate, it has impacted every
facet of society—how we work, learn, play, and now, even how we manage our health. In
this chapter, there is a brief history of the evolution of the Internet to the Web and now to
the Connected Age. There is a specific focus on the use of social media digital tools, and its
impact on healthcare and education. This is particularly true as we evolve from the Web 2.0
era to the Connected Age where it is not only access and interactions but about establishing
relationships. As Sarasohn-Kahn (2008, p. 2) noted, “the use of social media on the Internet
are empowering, engaging and educating consumers and providers in healthcare.” In the
Connected Age, everything and everyone is interconnected that ultimately will have an
impact on how we learn as well as how we receive healthcare. The benefits and challenges
related to the growing use of these tools are also discussed.
HISTORICAL PERSPECTIVE
Internet
As early as the 1960s, computer scientists began to write about the creation of a network of
interconnected computers where scientists could share and analyze data by interacting
across the network (Leiner et al., 1997). According to Cerf (1995), “the name ‘Internet’ refers
to the global seamless interconnection of networks made possible by the protocols devised
in the 1970s through DARPA-sponsored research.” The Internet is defined as “a computer
network consisting of a worldwide network of computer networks that use the TCP/IP
network protocols to facilitate data transmission and exchange” (http://
wordnetweb.princeton.edu/perl/webwn).
Over the next decade, various government agencies and companies conducted considerable
research to support the advancement of the Internet. It was not until 1985 that a broader
community, in particular the academic community beyond the computer scientists, was
given access to the Internet.
NSF funding for the Internet continued for almost a decade before the Internet was
redistributed to regional networks with the eventual move toward interconnecting networks
across the globe. As the Internet came to expand, Tim Berners-Lee wrote his seminal paper
Information Management: A proposal that circulated throughout the European Council for
Nuclear Research (CERN) organization. The paper explicated his ideas that using a hypertext
system that would allow for storage and retrieval of information in a “web of notes with links
(like references) between them is far more useful than a fixed hierarchical system” (Berners-
Lee, 1989).
Web 1.0
The Web in its first iteration (Web 1.0) allowed users to access information and knowledge
housed on Web pages complete with text, images, and even some multimedia. It was
considered a dissemination vehicle that democratized access to information and knowledge.
Many in the field designate the time period between 1991 and 2004 as Web 1.0.
This was an important era and, as noted by Friedman (2005), the world suddenly became
flat—his metaphor for the leveling of the global playing field. The convergence of the
personal computer with the world of the Internet and all its services facilitated the
flattening. The flattening was particularly powerful in the world of commerce but also
exploded in higher education, making it easier for students to access knowledge beyond
their own academic campus. For healthcare, it was a time when consumers could now have
access to health information and knowledge that was not locked in an academic library or in
a distant place.
Web 2.0
O’Reilly and Doughtery introduced the term Web 2.0 at a 2004 conference brainstorming
session (http://oreilly.com/web2/archive/what-is-web-20.html) about the failures of the
dot-com industry. It was apparent that despite the demise of the dot-com industry, “the web
was more important than ever, with exciting new applications and sites popping up with
surprising regularity” (O’Reilly, 2005).
There were several key concepts that formed the definition of Web 2.0. First, the Web is
viewed as a platform rather than an application. Second, the power of the Web is achieved
by harnessing the collective intelligence of the users. A third important principle was that
the Web provided rich user experiences. The introduction of Web 2.0 embodies the long
history of community spirit of the Internet conceived by its originators.
As Leiner and colleagues (1997, p. 206) noted, “the Internet is as much a collection of
communities as a collection of technologies, and its success is largely attributable to
satisfying basic community needs as well as utilizing the community effectively to push the
infrastructure forward.” The transition from an information dissemination platform to an
engaging, customizable, social and media-rich environment epitomizes this next generation
of the Web. As Downes (2005) stated, “the Web was shifting from being a medium, in which
information was transmitted and consumed, into being a platform, in which content was
created, shared, remixed, repurposed, and passed along.”
Another important feature was the idea of users interacting and sharing information, ideas,
and content. Owen, Grant, Sayers, and Facer (2006) aptly described the transition of the
Web, “we have witnessed a renaissance of this idea in the emergence of tools, resources and
practices that are seen by many as returning the web to its early potential to facilitate
collaboration and social interaction.” Although some have predicted (Berners-Lee, Hendler,
& Lassila, 2001) that there will be Web 3.0, known as the Semantic Web, this never
materialized as projected. There have been more recent references to such terms as the
Internet of Things (IOT) and the Connected Age. Both are fairly similar but there are some
distinctions. Ashton (2009) first described the IOT as “describe a system where the Internet
is connected to the physical world via ubiquitous sensors.”
In the 2012 Horizon Report (Johnson, Adams, & Cummins, 2012, p. 30), IOT “is the latest
evolution of network-aware smart objects that connect the physical world with
information.” Skiba (2013, p. 63) noted, “Several attributes are associated with these smart
objects; they are small, easy to attach and unobtrusive, contain a unique identifier and data
or information, and can connect with an external device on demand (e.g., your smartphone
or tablet).”
CONNECTED AGE
More recently, Oblinger (2013) introduced the concept of the Connected Age in higher
education. Abel, Brown, and Suess (2013) describe the Connected Age as an environment
that “offers new ways to connect things that were previously considered disparate and ‘un-
connectable’: people, resources, experiences, diverse content, and communities, as well as
experts and novices, formal and informal modes, mentors and advisors.” Oblinger (2013, p.
4) further noted, “Connecting is about reaching out and bringing in, about building synergies
to create a whole that is greater than the sum of its parts. Connecting is a powerful
metaphor.
Everyone and everything—people, resources, data, ideas— are interconnected: linked and
tagged, tweeted and texted, followed and friended. Anyone can participate.” As noted by
Skiba (2014, p. 63), “In higher education, we can think of these as learning pathways, created
by the individual or guided by other students or faculty. The bottom line is that learning
pathways are about connecting the dots—in the classroom, online, or even with people and
places outside the traditional academic environment.”
In healthcare, Caulfield & Donnelly (2013) offered a model of Connected Health that
“encompasses terms such as wireless, digital, electronic, mobile, and tele-health and refers to
a conceptual model for health management where devices, services or interventions are
designed around the patient’s needs, and health related data is shared, in such a way that
the patient can receive care in the most proactive and efficient manner possible. In this
model, patients, caretakers, and providers are ‘connected’ by means of timely sharing and
presentation of accurate and pertinent information regarding patient status through smarter
use of data, devices, communication platforms and people.” Iglehart (2014, p. 2) concurred
that Connected health is “an umbrella term to lessen the confusion over definitions of
telemedicine, telehealth and mHealth.” Iglehart (2014) as considered connected health as an
emerging disruptive technologies that has the potential to transform the healthcare delivery
system. Although both terms, IOT and Connected Age, speak to connections to everything
and everyone, IOT focuses on those connections with physical objects whereas the
Connected Age refers to more virtual connections especially with people, resources, and
ideas.
It is within the context of the Connected Age, that we examine the digital tools being used
to transform education and healthcare practice. In the Connected Age, digital tools are
primarily associated within the broad context of social media and mobile applications. The
Pew Research Internet Project has witnessed three technology revolutions since it began
studying the Internet. The three revolutions include broadband, mobile connectivity, and the
rise in social media and social networking in everyday life (http://www.pewinter
net.org/three-technology-revolutions/). The three revolutions are primary driving forces
behind the Connected Age. According to Fox and Rainie (2014), the World Wide Web
turned 25 on March 14, 2014, and has reached 87% penetration in terms of adult usage in
the United States. There is also considerable growth of cell phones from 53% in 2000 to
now 90% and also smartphones has increased to 58%.
When participants were asked about the impact on their lives, 90% claimed the Internet was
a positive influence. Users noted that being online was essential for not only job-related
responsibilities but for a many other facets of their lives such as learning, health, politics,
family, friends, and community interactions. It is interesting to note that 67% of users
indicated that online communications were positive and strengthened relationships with
family and friends. Facebook In a 2013 update specific to social media, Duggan and Smith
(2013) found that although 73% use social networking sites, Facebook being the most
prevalent, there are 42% who are also exploring other social networking platforms. On a
daily basis, most users check both their Facebook and their instagram accounts.
There is a growing use of Pinterest, LinkedIn, and Twitter. In terms of mobile devices, the
Pew Internet Research Mobile Fact Sheet (http://www.pewinternet.org/fact-sheets/
mobile-technology-fact-sheet/) indicated as of January 2014, 90% of American adults have
cell phones of which 78% have smart phones (Pew Internet Research Mobile Fact Sheet,
2014). There are also 52% of American adults with tablet computer devices and 32% with e-
reader devices. It is also interesting to note that 70% of teens (13 to 17 years old) and 79%
of young adults (aged 18–24) are owners of smart phones (Nielsen Corporation, 2013).
According to Nielsen’s Digital Consumer Report (Nielsen Corporation, 2014), social media is
well integrated into the fabric of everyday life. The Digital Consumer Report documented
that 64% of social media users log in at least once a day and almost 50% log into their social
network on their smart phone on a daily basis. “Mobile devices are certainly driving the
growth in social media, as social media app usage increased 37 percent in 2013 compared to
last year” (http://www.nielsen.com/us/en/newswire/2014/ whats-empowering-the-new-
digital-consumer.html).
According to Bradley (2010), there are six defining characteristics that distinguish social
media from other collaboration and communication IT tools. These characteristics are
Participation, Collective, Transparency, Independence, Persistence, and Emergence.
Participation echoes the “wisdom of the crowds” concept, but note that there is no wisdom
if the crowd does not participate. The term collective refers to the idea that people collect or
congregate around content to contribute, rather than the way individuals create and
distribute content in the Web 1.0 world. Transparency refers to the fact that everyone can
see who is contributing and what contributions are made. Independence refers to the
anytime, anyplace concept; people can participate regardless of geography or time.
Persistence refers to the notion that information or content being exchanged is captured
and not lost as in a synchronous chat room. Lastly, “the emergence principle embodies the
recognition that you can’t predict, model, design and control all human collaborative
interactions and optimize them as you would a fixed business process” (Bradley, 2010).
Taken together these characteristics define the new world of social media. Blogs In the
Connected Age, social writing and communication are important concepts for sharing
resources and ideas as well as for making connections with people similar to you. Social
writing can take many forms and include, but are not limited to, wikis, blogs, and
microblogging. Blogs, short for Web logs, are considered to be personal Web sites where
content is displayed for visitors to review and comment upon (Adams, 2008). A top listing of
healthrelated blogs is available at the following Web site: http:// labs.ebuzzing.com/top-
blogs/health. The Health Care Social Media List, maintained by the Mayo Clinic’s Social
Media Health Network, documents the types of social media being used by hospitals across
the United States. There statistics demonstrate although blogs were once very popular,
there are fewer blogs being maintained by hospitals. Of the 1544 hospitals
(http://network.socialmedia.mayoclinic.org/hcsml-grid/0), only 209 have blogs. Wikis are
coined after the Hawaiian work for fast, and are a means to establish an easily and quickly
accessed consumer-driven knowledge base (Meister, 2008); they are essentially
collaborative tools that are “based on social regulation rather than technical safeguards”
(Digital Library Federation, 2008). Wikis, as a form of social writing, are also prevalent in
healthcare. CliniWiki (www.informatics-review. com/wiki/index.php/Main_Page) is a popular
wiki targeted toward clinical informatics topics. This wiki contains information on a variety
of topics in such areas as clinical decision support systems, unintended consequences of
technology, federal initiatives, and usability. Professional organizations, such as HIMSS, also
maintain a Decision Support Wiki (http://himssclinicaldecisionsupportwiki.pbworks.com/w/
page/18288587/FrontPage). An interesting educational Web site in informatics is the
University of Edinburgh’s Informatics wiki
(https://www.wiki.ed.ac.uk/display/Informatics/Home) that is focused primarily on
educational opportunities, student projects, discussions, and resources. Another important
wiki is of course the ever-popular Wikipedia (http:// en.wikipedia.org/wiki/Main_Page) that
maintains over 4 million articles. Microblogging, the combination of texting and blogging,
adds a new dimension to communication a writing and is growing in popularity. Historically,
electronic mail (e-mail), instant messaging, and text messaging have been less public forms of
communication. These forms have been seen as one-to-one communication. Microblogging,
using such tools like Twitter, now allows consumers to post content to a Web site, which
then automatically distributes the content to others who have “subscribed” to the
individual’s site; this creates short bursts of communication among any number of
individuals (Hawn, 2009). These microblogging sites allow social communication to come
directly to consumers, rather than requiring that consumers go and seek it out themselves.
These short bursts of communication, known as Tweets, are limited to a specific number of
characters (140). In education, twitter is being used in various ways. One example is when
conference participants tweet information being presented at the conferences to their
students (McKendrick, Cumming, & Lee, 2012). Educators are also using Twitter in the
classroom to encourage student engagement. In healthcare, there is a rise in the use of
microblogging especially in the public health arena. According to Eysenbach (2009),
“Infodemiology can be defined as the science of distribution and determinants of
information in an electronic medium, specifically the Internet, or in a population, with the
ultimate aim to inform public health and public policy.”
The electronic medium can be supply driven, such as the information being published in
blogs, microblogs, and discussion groups, or it can be demand driven that includes Web
searching and navigation. Some examples of the use of Twitter include its use in tracking
trends in health behaviors: physical activity (Zhang et al., 2013); dietary (Hingle et al., 2013);
smoking (Myslín, Zhu, Chapman, & Conway, 2013); and prescription drug abuse (Hanson,
Cannon, Burton, & Giraud-Carrier, 2013). Other uses include dissemination of vital
information during disasters and documentation of the extent of crisis such as the H1N1 or
SARS viruses.
SOCIAL NETWORKING
Social networking embraces many of the defining characteristics of the Connected Age and
is a major component of connected learning and connected health. First, participation and
collaboration were two of the principal themes in Web 2.0 (Eysenbach, 2008) and are the
driving forces behind the social media movement with continued relevance in the
Connected Age.
Another aspect of social networking is the ability to share user-generated content in the
form of videos, stories, or photographs. In addition to adding and viewing content,
consumers can also post comments to media someone else has contributed, thus adding
another level of communication to these sites (Skiba, 2007).
Of the available digital tools, social networking offers the most opportunity for peer support
and consumer engagement. Users can make connections with people that they already know
in person or may connect with others through associations that they create (Boyd & Ellison,
2007). Essentially, the social networking site serves as a powerful tool to engage and
motivate consumers to share personal information, establish relationships, and communicate
with others. This is definitively exemplified in the phenomenal growth of social networks
such as Facebook.
Facebook celebrated its tenth anniversary in 2014 and is considered the dominant social
networking site where 57% of adults and 73 % of teens (12–17 years old) used Facebook.
According to a recent Pew Research Center study, despite the growing number of adults
using Facebook on a daily basis, the younger generation “are not abandoning the site”
(Smith, 2014). Here are some additional facts about Facebook. Although users dislike some
aspects of Facebook (sharing too much personal information and posting photos without
permission), the users do not want to miss out on social activities. Second, 47% like the
ability to share photos and videos with friends as well as sharing with many people at the
same time. They also like updates from their friends and humorous content.
Third, 50% of adult users have over 200 friends on Facebook. Fourth, younger rather than
older users have “unfriended” a person. Fifth, although most users do not change their status
on Facebook, they do like to comment on friend’s postings. Lastly, those that do not use
Facebook are still familiar with Facebook through their family members. Higher education,
including healthcare professional education, is taking full advantage of the collaborative
features of social networks and mobile access to create dynamic and collaborative learning
experiences.
The dynamic nature of collaboration via the Internet offers learners the opportunities to
share working knowledge, provide professional support, and create communities of learning.
Social media complements and supports e-learning opportunities where students are able to
have more control over the pace, sequence, and timing of their learning experience (Ruiz,
Mintzer, & Leipzig, 2006). These new digital learning environments aim at deepening the
level of engagement for the student experience (Boulos, Maramba, & Wheeler, 2006) and
also allows students to connect to a vast array of accessible resources knowledge, expertise,
and social connections (Alliance for Excellent Education, 2014).
In the field of informatics, Skiba & Barton (2009) described the use of social networking
tools at the University of Colorado College of Nursing. In this graduate program, they have
embraced the use of social media to engage and retain online learners but also to attract
potential students to the program. The program incorporates various social media, such as
social networking and virtual worlds, as part of the online learning environment. Another
example is the University of Oregon Biomedical Informatics program that includes the use of
blogs to connect students and faculty within their programs. More recent applications of
social networks are appearing as universities and specific programs form LinkedIn groups of
their graduates or current students.
In nursing education, one of the best known social networks was Meet Stella Bellman (Skiba,
2010), a mannequin in a simulation lab at Mesa Community College (https://www.facebook.
com/stella.bellman) and was used to connect and communicate with nursing students.
Healthcare institutions and consumers have already begun to capitalize on the limitless
utility of social networking. Numerous hospitals and healthcare-related organizations have
social networking sites where patients and visitors can explore details about the facility,
learn more about available services, and find information about diseases and/or treatments
(Sarasohn-Kahn, 2008). Of the available social networking sites, Facebook stands out as one
of the more popular, as it has proven useful for resource sharing, communication, and
collaboration (Mazman & Usluel, 2010). According to the Mayo Clinic’s Center for Social
Media List, of the 1544 hospitals using social media, there are 1292 hospitals that have
Facebook social networks and 651 that have LinkedIn groups.
To learn more about the top hospitals that are social media friendly, you can visit the
rankings of hospitals conducted by MHdegree.org (http://mhadegree.org/ top-50-most-
social-media-friendly-hospitals-2013/). At the top of the list are Mayo Clinic, Cleveland
Clinic, University of Texas MD Anderson Cancer Center, Mt Sinai Medical Center, and the
University of Michigan Hospitals and Health Centers.
Social Network
One of the first social networks in healthcare was Matthew Zackery’s i2y social network (I
am too young for this Cancer Foundation). At one of the first Health 2.0 conferences,
Zackery presented his experiences in creating the social network targeted for young adults
with cancer. To learn more, you can visit the following Web site: http:// stupidcancer.org/
The Centers for Disease Control (CDC) has embraced the use of social media and was used
extensively in their H1N1 campaign. The CDC site (www.cdc.gov/h1n1flu) not only
connects people to the CDC, but also to other social networks such as Facebook, My Space,
and Daily Strength.
It provides videos, podcasts, e-cards, widgets, RSS feeds, and the ability to get text messages
and join their Twitter subscription. Their Web site (http://www. cdc.gov/socialmedia/)
contains a variety of resources that are used such as current campaigns as well as a Social
Media Toolkit to help people create their own social media campaigns. Perhaps one of the
most interesting and well-researched social networking sites is PatientsLikeMe
(www.patients likeme.com). Through this social network, patients from all over the world
convene and share their experiences while dealing with chronic conditions such as Multiple
Sclerosis (Sarasohn-Kahn, 2008). The creators’ brother, who was living with amyotrophic
lateral sclerosis (ALS), was the inspiration for the network.
Two brothers and a friend, all Massachusetts Institute of Technology engineers, created this
network with the following goals in mind:
(1) share health data,
(2) find patients with similar conditions, and
(3) learn from each other.
Patients are asked to share data in the hope of improving the lives of all diagnosed with that
particular disease. The site currently supports over 250,000 members, over 2000 health
conditions, over 40 published research studies, and over 1 million treatment and symptom
reports (http://www.patientslikeme.com/). The site does not have any fees and is kept free
from advertising through revenues stemming from research awareness programs, market
surveys, and the sale of processed anonymized data (Brownstein, Brownstein, Williams,
Wicks, & Heywood, 2009). Members use aliases rather than real names and can openly
share details about their healthcare experiences, drug regimens, and treatment side effects
(Hansen, Neal, Frost, & Massagli, 2008; Sarasohn-Kahn, 2008). The primary motives behind
such sharing are to ask or offer advice and to build a relationship with others in similar
situations (Hansen et al., 2008). “Rather than disseminating medical advice, PatientslikeMe
serves as a platform for peers to interact with one another in a data-driven context”
(Brownstein et al., 2009, p. 889).
Patients have actually taken information they have learned from PatientsLikeMe to their
own healthcare providers to request to be put on specific treatments (Goetz, 2008). More
recently, PatientsLikeMe has launched a Data for the Good Campaign to encourage patients
to share their health data to advance healthcare research (http://
news.patientslikeme.com/press-release/patientslikemelaunches-data-good-campaign-
encourage-health-datasharing-advance-medic).
A recent report by the eHealth Initiative with funding from the California Healthcare
Foundation examined the use of social media to prevent behavioral risk factors associated
with chronic disease. According to this report (eHealth Initiative Report, 2014, p. 7), “By
seeking and sharing information online, health consumers (or “ePatients”) are using social
media to become more equipped, enabled, empowered, and engaged in managing their
health, care, and wellness.” Although healthcare providers continue to play a primary role in
the provision of health information, “more Americans than ever value social networks (e.g.
friends, family members, and fellow patients) for emotional support and advice on everyday
health issues” (eHealth Initiative Report, 2014, p. 7). Healthcare is in essence becoming more
social (SarasohnKahn, 2008; Fox & Jones, 2009, HIMSS Social Media Work Group, 2012).
Fox (2011) summarized it as “Peer-to-peer health care is a way for people to do what they
have always done – lend a hand, lend an ear, lend advice – but at internet speed and at
internet scale.” The eHealth Initiative Report (2014) developed a specific taxonomy to
classify social media tools for chronic diseases. This taxonomy includes such tools as Internet
support groups, media sharing, messaging boards/discussions, microblogs, social networking
general and specific to a particular disease, Weblogs, and social games and challenges.
Grajales, Sheps, Ho, Novak-Lauscher, & Eysenbach (2014) conducted a narrative review of
social media and its use in healthcare. They reviewed 76 articles, 44 Web sites, and 11 policy
reports to derive 10 categories of social media: blogs, microblogs, social networking sites,
professional networking sites, thematic networking sites, wikis, mashups, collaborative
filtering sites, media sharing sites, and virtual worlds. They found that social media was fairly
extensive, there was a need to begin to address challenges related to governance, ethics,
professionalism, privacy, confidentiality, and information quality.
The growth of these studies has generated several systematic reviews to provide evidence
for the use of these tools in promoting and managing various patient populations. Here is a
sampling of some systematics studies. Moorhead et al. (2013) completed a systematic
review to examine the uses, benefits, and limitations of social media for health
communications. Capurro et al. (2014) conducted a systematic review of social networking
sites for Public Health practice and research. Chang, Chopra, Zhang, and Woolford (2013)
analyzed studies in the role of social media in online weight management. Maher et al.
(2014) conducted a systematic review of the effectiveness of behavior change interventions
through social networks. Most found promising results but there was a need for additional
studies.
The eHealth Initiative Report (2014) concluded that social media provides a multitude of
benefits to patients by “enabling health education and enhancing behavior by:
The development and continuing research in the use of social media will expand and more
studies will continue to provide additional evidence of their effectiveness. There is little
doubt that the social life of healthcare (Fox & Jones, 2009) will continue. Despite their
prospects, digital tools in the Connected Age do not come without certain limitations and
risks. Like any element of our digital environment, they pose concerns for privacy, security,
and legal issues.
The sharing of personal information is also an issue with the use of social media by students.
It is not just the sharing by healthcare professional students of their own information in
social networks but also the potential of them sharing personal health information of their
patients on social networks. Such was the case of nursing students posting a picture of a
patient’s placenta (Skiba, 2011). There are also concerns about privacy and confidentiality.
Their concerns are not unfounded since the rates of identity theft are on the rise and
Internet security cannot ever be fully ensured (Acoca, 2008; LaRose & Rifon, 2006). Social
media applications promote information sharing and the open display of personal
information, such as age, gender, and location.
Posting this and other content creates digital footprints or lingering information that can be
connected back to the consumer who provided it (Madden, Fox, Smith, & Vitak, 2007); these
bits of information can then be found and coalesced to form a more complete picture of the
individual, thus negating the apparent transparency supposed by Web 2.0 applications
(Madden et al., 2007). A recent study conducted by Grajales et al. (2013) found there are
worries about sharing data, many U.S. adults (94%) are willing to share their health data to
improve care and believe that data sharing can help other patients as well as themselves.
Users of social media are at risk for social threats as well (Nosko, Wood, & Molema, 2010).
Characterized as stigmatizing and bullying, social threats can pose significant dangers to
consumers and those with whom they are affiliated (Nosko et al., 2010). In addition, there
may be legal issues related to risk management and liabilities. It has long been known that
Internet content is not regulated and may be unreliable (Eysenbach & Diepgen, 1998; Powel,
Darvell, & Gray, 2003). Healthcare and educational organizations in the Connected Age must
also be cognizant of the legal implications. Not only will they have to monitor the content
being shared on their site for appropriateness, reliability, and quality of their information,
they will also need to be sure there are no copyright infringements (Lawry, 2001).
Healthcare practice licenses are also an issue considering that in the Connected Age, there
are no real geographic boundaries (Grajales et al., 2014). The digital divide, or gap in
usability, exists for some consumers who either lack physical access to the Internet or do not
have knowledge or skills to navigate the myriad information on the Internet safely and
effectively (Baur & Kanaan, 2006; Cashen, Dykes, & Gerber, 2004).
Physical access limitations can be described as lack of resources to obtain the hardware or
software to utilize these tools (Baur & Kanaan, 2006; Cashen et al., 2004). Lack of
experience describes the knowledge and skill deficit that hinders a consumer’s ability to
navigate tools effectively and safely. Some have also found that ethnic disparities do exist in
regard to Internet access but, surprisingly, not in regard to social media use (Chou, Hunt,
Beckjord, Moser, & Hesse, 2009). As with most innovations, these challenges can be partially
addressed through the development and implementation of social media policies by
organizations, including user-generated networks. This is particularly important given that
most healthcare agencies are risk adverse regarding patient care. Professional organizations,
such as American Nurses Association, American Medical Association, and the National
Council of State Boards of Nursing, have provided guidance and social media policies (Skiba
et al., 2014). Barton and Skiba (2012) also present social media policy recommendations for
educational institutions. The Mayo Clinic Center for Social Media provides resources related
to social media policies (http:// network.socialmedia.mayoclinic.org/)