Infant Toddler Development Training M1
Infant Toddler Development Training M1
Lesson 1
Module Description
This module presents basic information about typical child development. Child development theories,
causes and characteristics of prevalent developmental disabilities and disorders, and their effect on child
development and families are addressed throughout the module. It is important that Infant Toddler
Developmental Specialists are knowledgeable about the various factors that impede child growth and
development, and the effect developmental disabilities and disorders have on the child, family, and
others. Required Readings
The required text for this module is: Sandall, S., McLean, M.E., Smith, B.J. (Eds.) (2000) DEC
Recommended Practices in Early Intervention/Early Childhood Special Education.
Denver, CO: Division of Early Childhood. Learners will also need to access the Resource Bank for Adobe
Acrobat (PDF) documents and website material. Learners should be aware that links to websites and
additional articles are likely included within the various lessons of this module. Participants are
expected to carefully read assigned materials and be prepared to answer questions regarding all
content during the self-assessments and final evaluation.
Module Objectives and Corresponding Florida Department of Health (FDOH) Competencies
1. Describe prenatal development and birth process. Demonstrate awareness of the critical
development that occurs during the prenatal period to three years of age. (FDOH B-1)
2. Define, discuss, and apply major theories of human growth and development (e.g., Erikson,
Vygotsky, Piaget) and the interrelatedness of the developmental domains. (FDOH B-2)
3. Distinguish between differences related to cultural practices (ethnic and regional) and
educational delays, as these differences relate to coaching families in ways to help their
children make developmental progress. (FDOH B-3, B-14)
4. Describe the etiology and symptomology of common developmental disabilities or conditions in
young children and their developmental effect, including disorders of central and peripheral
nervous system; bones muscles and joints; genetics, metabolic and gastrointestinal tract; heart,
lungs, and circulation; chronic illness; sensory systems; and learning disabilities/cognitive delay.
(FDOH B-3, B-4, B-5, B-7)
5. Identify characteristics of physical contexts influencing development and learning. (FDOH B-7,
B-3, B-4)
6. Describe sequences, characteristics, and interrelationships in development across domains,
including attachment and social/emotional development, sensory perceptual and motor
development, development of knowledge and understanding, development of communication
and language. (FDOH B-14, B-7, B-6, B-5, B-4)
7. Describe theoretical and research models regarding interactions between disabilities, risk factors,
environments, and development. (FDOH B-14, B-6, B-7, B-5, B-4, B-3)
8. Identify potential effects of general and specific disabilities, delays, or risk factors of parent-child
interactions and on different domains of development. These include attachment and
social/emotional development, sensory perceptual and motor development, development of
knowledge and understanding, development of communication and language,
environmental/cultural, abuse and/or neglect, biological, prematurity, birth trauma, and parental
involvement. (FDOH B-3, B-14, B- 7, B-4)
9. Explain variations in development that may be the result of a disability or health condition
and their potential effect on future development. (FDOH B-7, B-4, B-6)
Infant Toddler Development Training Module 1
Introduction
This lesson presents basic knowledge about typical child development. Samples of typical milestones in
the areas of motor/physical, cognitive, social/emotional, communication/language, and self-
help/adaptive are presented. Even though no two children mature and develop alike, there are
predictable sequences in all the developmental domains.
Learning Objectives
Upon completion of this lesson, you will be able to:
During the first trimester, conception to the third month, individuals are made up of trillions of cells
which contain a chemical molecule called DNA. Genes, which are segments of DNA, determine unique
characteristics. Sex cells or gametes are formed during special cell division, or meiosis, where the usual
number of chromosomes in human cells is split in half. At conception, when sperm and ovum unite,
each new being has the correct number of chromosomes. A girl child or a boy child will be established
depending on the combination of sex chromosomes.
During the first trimester, the fetus grows to about 3 inches long and weighs about 1 ounce. The fetus'
nervous system, gastrointestinal system, spinal cord, senses, brain, heart, and lungs begin to develop.
The face begins to form, the arms, legs, fingers, and toes begin to move. The fetus can also smile, frown,
suck, and swallow and the sex can be distinguished.
During the second trimester, month four through month six of the
pregnancy, the fetus grows to about 15 inches long and weighs about 1 ½
pounds. The fetus' fingernails, toenails, hair, eyelashes, and eyebrows
form during this time. The fetus can suck its thumb and hiccup. The
heartbeat can be heard with a stethoscope and its eyes are opened.
During the last months of the pregnancy, the fetus gains more than five
pounds and increases in length by about 7 inches and becomes more
active in the womb. During this time, the fetus gains immunities from the
mother, becomes less wrinkled, and begins to store iron in its liver. The
fetus responds to sounds, particularly the mother's voice, and goes
through periods of wakefulness and sleep and as the brain development
continues, the fetus spends more time awake. The bones of the fetus'
head are soft and flexible prior to the birth process. During the last few
weeks of the pregnancy, the fetus becomes active, growth slows, and the
fetus will begin to assume the birth position.
Infant Toddler Development Training Module 1
Cognitive Domain
The cognitive domain refers to intellect or mental abilities. Cognition involves receiving,
processing, and organizing information that has been perceived through the senses and
using the information appropriately. Cognition entails interaction between the individual
child and his/her environment or events in the environment. Survival and primitive learning
in infants begin with reflexive behaviors.
Babies can follow simple instructions, reach for toys that are
8 -12 months out of reach but within sight, and show appropriate use of
everyday items by pretending.
Social/Emotional Domain
The social/emotional domain encompasses feelings and emotions, behaviors, attachments
and relationships with others, independence, self-esteem, and temperament. Infants like to
be held and cuddled when awake and begin to establish a bond or emotional attachment
with parents and caregivers which evolve into a sense of trust and security.
Communication/Language Domain
The communication/language domain refers to perceiving, understanding, and producing
communication/language. Communication abilities will vary on age ranging from crying and
fussing to eventually communicating with spoken sounds and words.
Self-Help/Adaptive Domain
The self-help or adaptive domain involves adapting to the environment and ability to do
things for oneself. Some skills associated with this domain include feeding, dressing,
toileting, and drinking independently.
Babies express the need for food by crying. They also signal
the need for diaper changes and express pleasure when
Birth - 4 months placed in warm water (bathing).
Eventually during this time, they begin to help by using their
own hands to guide the nipple.
Children begin to hold their own cup and drink and begin to
eat finger foods. They also begin to pull off soiled or wet
8 -12 months
diaper. Generally, children during this age begin to sleep
until 6 or 8 am.
Qualitative differences focus on changes in the way children think, behave, and perceive the
world differently as they mature. An example of qualitative differences would be a child that
at a young age has difficulty understanding the perspectives of others (otherwise known as
egocentrism). Children's perceptions in thinking change as they get older and evolve into the
ability to see things from others' perspectives. This change in perception represents a
qualitative difference.
Considering Child Development from a Culturally Relevant Perspective
As a society, we are becoming more and more diverse. Underrepresented groups--
minorities (African Americans, Latinos, Asian Americans, and Native Americans) who
represent 1/3 of the U. S. population now will account for more than one half of the
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The table below displays the estimated and projected percentages of children under the age
of 18 in the United States by race/origin.
Caucasian / non-Hispanic 74 69 67 65 64 59 55
Hispanic 9 12 14 15 16 21 23
The above population figures for the year 2000 are estimates based on the 1990 Census, not the
2000 Census.
As noted above, in 2000, 64 percent of the children in this country were Caucasian; 16
percent were Hispanic; 15 percent were African American, 4 percent were Asian/Pacific
Islander; and 1 percent was American Indian/Alaska Native. Since 1900, the percentage of
Caucasian children has decreased, whereas the percentages of African American and
American Indian/Alaska Native children have remained stable. The percentage of
Asian/Pacific Islander children doubled over the past twenty years (1980 - 2000) and is
projected to continue to increase to 6 percent by the year 2020. The fastest growing
racial/ethnic group of the child population is Hispanic. The percentage of Hispanic children
increased from that of 9 percent in 1980 to 16 percent in 2000. Projected statistics reflect a
continued increase of Hispanic children to 23 percent by 2020 (America's Children: 2001).
The learner may wish to reference the Resource Bank (left menu) for details from the original
source of this information.
Activity#1
There are many resources that provide developmental milestones in all domain areas. The
following offer more in depth and specific information concerning typical child development.
Visit these resources and note the main developmental milestones for each domain. Print
out applicable information to use as a resource in your work as an ITDS.
Activity#2
It is important to have a working knowledge of typical child development to identify
infants/toddlers who may have significant developmental delays. Using the six resources
above from Activity #1 and the chart below as a guide, identify specific "typical"
developmental events in the five domains listed below for a child 18 months of age.
Sample of Typical Developmental Milestones for 18 Month Child
Activity#3
As noted above, it is important for the ITDS to be cognizant of both typical and atypical
child development. Many times, parents and caregivers rely on the ITDS to provide
guidance in this area, particularly concerning appropriate routines and activities. For this
activity you will need to use the developmental information for a child 18 months of age
from the websites listed in Activity #1 and your findings in Activity #2. In the chart below,
identify and list five toys you would consider to be appropriate for a child 18 months of age,
keeping in mind the perceptual capacities needed to respond to the toys, motor skills
needed to access the toys, and the skills promoted by the toys?
Suggested Answers:
Toys below were chosen because a child of 18 months can: pick up the objects due to the
size of the knobs and blocks and clown pieces, farm pieces...each toy has more than one
object and children aged 18 months can use 3-4 objects...children this age can cross
objects across midline, walk and run, imitate adults and animals, and can follow simple
directions.
• geometric shapes with jumbo knobs
• stacking clown (or any type of stacker toy)
• mega blocks
• cars/walkers
• play farm set
Lesson 1 Highlights
This lesson provided a basic overview of child development. Typical and atypical child
development was defined. The three stages of prenatal development were discussed, and
samples of developmental milestones were addressed for each of five domains:
motor/physical, cognitive, social/emotional, communication/ language, and self-
help/adaptive. Distinctions between quantitative and qualitative differences were discussed
as well as the necessity of looking at child development from a culturally relevant
perspective due to the ever-increasing diversity in our country.
References
U. S. Bureau of the Census. (2000). Statistical abstract of the United States. Washington,
DC: Government Printing Office.
• Define theories of child development and identify how they can be useful in working
with young children and their families.
• Define bioecological systems.
• Identify six major developmental theories and an identifying characteristic of each
theory.
• Describe Erik Erikson's theory on trust and autonomy in social/emotional
development during infancy and toddlerhood.
• Identify key Piagetian concepts in relation to the Sensorimotor Stage in his
Cognitive-Developmental Theory
• Describe the theory of human development that best reflects your own beliefs about
children.
• Explain how knowledge of developmental theories can guide you in your interactions
with children.
Resources
The following resources are necessary for the completion of this lesson. Learners may wish to
access and print a hard copy of the resources prior to beginning the lesson and for future
reference. Some resource documents can be found in the Resource Bank. Others are available
online.
• Behaviorist Theory
• Bronfenbrenner's Ecological Systems Theory
• Cognitive Development Theory
• Erikson's Stages of Development
• Maturationist Theory
• Piaget's Cognitive Development Theory
• Social Development Theory
Key Words
Definitions of key words are found in the glossary.
• Autonomy
• Scaffolding
• Zone of Proximal Development
theory focuses on mental growth as being the most important element in a child's
development. Piaget believed that individuals progress through four ages of cognitive
development: sensorimotor (0-2 years of age), preoperational (2-7 years of age), concrete
operational (7-11 years of age), and formal operational (11 years of age - adulthood).
The second layer is the mesosystem which depicts the interactions and linkages of the
interconnections of the microsystem (i.e., parents are affected by childcare providers and
childcare providers are affected by parents). The third layer is the exosystem which depicts
additional ecological systems that affect child development more indirectly. The exosystem
consists of such systems as legal services, social services, neighbors, extended family, and
workplace. Even though that don't “touch” the child's life, they indirectly affect the child's
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experiences. The last layer in the bioecological system is the macrosystem. This level
contains laws, customs, and values of a particular society or cultural system. Even though
these institutions don't directly affect the individual child, they can have a strong influence
on the child. The chronosystem reflects the dimension of time regarding the child's
environment and is illustrated with a line that cuts across the entire circle which emphasizes
the effect of time across the entire system. This system can be external factors such as a
death of a parent or internal factors such as the aging of a child and the changes that occur
over time. This theory has been viewed as culturally sensitive in that it focuses on all the
influences (social, political, and economic contexts) in which development occurs. From this
perspective, positive child development occurs when all influences, both direct and indirect,
are considered. Refer to Activity #3 for a diagram of the bioecological systems theory.
Knowledge of Developmental Theories Influence on Interactions with Children
Each theory provides beneficial information in
understanding why children behave, grow, and learn as
they do. Parents and caregivers should determine their own
theory about how children learn and develop. Theories can
assist in making decisions about the care of young children
and provide guidance to parents and caregivers. Having a
clear idea of one's own beliefs can lead to consistent
parenting and caregiving. The parents or caregivers'
decisions about dealing with specific situations will depend
on their own personal theory about child development.
Decisions will be made consistently and specifically, and
useful strategies can be used depending on one's own
theoretical perspectives. A working knowledge of how
children develop and learn helps to provide children with the
conditions in which to lead happy fulfilled lives.
Activity #1
Review the linked material associated with the six major theories of child development:
Some sources are in the Resource Bank while others are available as online links.
• Behaviorist Theory
• Erikson's Stages of Development
• Cognitive Development Theory
• Piaget's Cognitive Development Theory
• Social Development Theory
• Bronfenbrenner's Ecological Systems Theory
After reviewing the above resources, reflect on which theory of child development is most
representative of your own beliefs about children. Think about why you have chosen the
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theory you have. Did you choose the theory based on your own upbringing, your own
personal experiences, or educational experiences? Consider how your own personal belief
system of child development can influence how you interact with children.
Activity #2
A mother describes her child as being extremely shy, withdrawn, and isolates herself from
her peers. The child goes out of her way to avoid other children and does not speak to any
other child.
Write out some specific strategies you would discuss with the parent to solve this problem
from a psychoanalytical theorist viewpoint? How would you promote attachment and
autonomy once a sense of trust is acquired?
Activity #3
Poverty is a very debilitating condition for children and families in this country. Poverty can
cause delays in cognitive development and language in young children and can influence
their socialization and emotional well-being, not to mention physical growth and health.
According to the 2000 census, 18.8 percent of children under the age of five living in Florida
are living in poverty. Children born in poverty are at a higher risk of death from infections
and parasitic diseases, drowning or accidents (Puckett & Black, 2001). Children in poverty
are also more likely to be premature and exhibit low weight for their height which can affect
brain growth and development. Families can face many stressors because of poverty.
Using the diagram of the bioecological system below, develop one strategy per layer to help a
child/family living in poverty.
Lesson 2 Highlights
This lesson provided a basic overview of six of the more common theories on child
development. It is important for the ITDS to be knowledgeable of the various theories on
child development. One's own personal theory about child development can assist in making
consistent decisions when the need arises. Planning for implementation of services needs to
be consistent to provide a conducive environment for the child and his/her family.
References
• Berk, L. E. (1999). Infants and children: Prenatal through middle childhood. Boston:
Allyn and Bacon.
• Kopp, C. B., & Krakow, J. B. (1982). Child development in social context. Boston:
Addison Wesley Publishing
• Puckett, M. B., & Black, J. K. (2001). The young child: Development from prebirth
through age eight. Columbus: Prentice-Hall.
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Lesson 3
Introduction
In previous lessons, we have identified typical child development and theories that describe
child development. This lesson will focus on the many factors that can affect a child's
development. Some factors can affect a child's development prior to birth, during birth,
and/or after birth and can consist of biological, environmental, and/or cultural influences.
This lesson will provide an overview of the various factors that can affect child development.
Learning Objectives
Upon completion of this lesson, you will be able to:
• Amniocentesis
• Teratogen
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If parents or caregivers believe that environment has a large influence throughout a child's life,
then they would make sure children would have high quality experiences past their primary
years into adulthood. Overall, the debate over nature versus nurture has created various ways
to view child development. Following below are various nature and nurture influences on child
development.
Factors that May Lead to Atypical Child Development
Previously we discussed typical child development and the vast differences that can exist.
Some newborns have developmental differences caused by unfavorable conditions before,
during, or after birth due to genetic and/or environmental influences. Factors that may lead
to atypical child development are addressed below.
Teratogens
Sometimes atypical child development can be the result of teratogens' harmful agents in the
environment. There are many teratogens in the environment such as the sedative drug
thalidomide, which was found to have drastic effects in that it produced gross malformations
of the embryo's developing arms and legs. Exposure to Agent Orange and other chemical
weapons have resulted in developmental delays for young children. Smoking, alcohol, and/or
drug use during pregnancy has also been linked to developmental problems at birth.
Drug abuse during pregnancy will have a significant effect on the developing fetus. Maternal
use of cocaine, heroin, and similar drugs during pregnancy has been associated with
miscarriages, premature birth, physical malformations, breathing difficulties, and higher risk
of death at birth. Babies born addicted to cocaine and heroin suffer through withdrawals at
the onset of life. It is also important to mention that paternal risk factors, such as the
father's drug use may also damage chromosomes and cause malformations in the fetus.
Cocaine ingested by the father adheres to the sperm cell and is present at the time of
fertilization and can cause problems for the development of the fetus.
Maternal smoking has also been linked to miscarriage, premature birth, and low birth weight.
Research suggests that the effect of smoking can be long-term in that children of smoking
mothers during infancy are less responsive, more sluggish, and fussier (Chavkin, 1995; Diaz,
1997) and in later years, less competent readers and exhibit social adjustment problems
(Fergusson, Horwood, & Lynskey, 1993). Maternal alcohol consumption during pregnancy can
lead to impairments in the newborn's nervous system, mental retardation, hyperactivity, and
Infant Toddler Development Training Module 1
deficiencies in physical development. Adolescents exposed prenatally to alcohol are more apt
to exhibit learning and socialization problems (Colburn, 1996).
Go to the NIDA Survey which reports interesting data. According to Mathias (1995), "more
than 5 percent of the 4 million women who gave birth in 1992 used illegal drugs while they
were pregnant." Even though this study is somewhat dated, it contains extensive research
data on drug use and pregnancy and provides relevant yet startling information. The
National Institute on Drug Abuse (NIDA) sponsored survey on drug use during pregnancy
also found 20.4 percent of pregnant women smoked and 18.8 percent drank alcohol at some
point during their pregnancy. Note the table that illustrates pregnant women's usage of
various drugs based on race. African American women ranked highest in use of illicit drugs
during pregnancy (11.3%) compared to white women (4.4%) and Hispanic women (4.5%).
Use of alcohol and cigarettes were found to be highest by white women (23 % and 24.4 %,
respectively) compared to African American women (15.8 % and 19.8 %, respectively) and
Hispanic women (8.7 % and 5.8 % respectively).
Over the counter or prescription drugs can also pose a threat to prenatal development. Such
drugs as aspirin, tetracycline, and Valium have been known to cause complications and
health problems. The drug diethylstilbestrol (DES), a drug early on prescribed to prevent
miscarriage showed onset of difficulties on the offspring at puberty. Daughters were noted to
have a higher rate of cervical cancer, vaginal abnormalities and are more likely to miscarry
(Nevin, 1988). Male offspring were also found to be more likely to have genital abnormalities
(Wilcox, Baird, & Weinberg, 1995).
Additional teratogens from those mentioned above include exposure to radiation (x-rays),
exposure to mercury and lead compounds (via car exhaust, paint, and other industrial
materials), and maternal diseases (e. g., rubella, AIDS, and toxoplasmosis--parasite
infection caused by exposure to cat feces or undercooked meat). Children and pregnant
women are the most vulnerable to mercury and lead poisoning. Pregnant women and
children can incur damage to the nervous system, brain, and reproductive system by
inhaling mercury vapors or through consumption of contaminated fish or birds.
Other Maternal Factors
In addition to avoiding the above-mentioned teratogens, there are numerous ways in which
expectant mothers can promote the development of their unborn child. Prenatal health care
is important to seek as soon as pregnancy is suspected. Prevention or detection of possible
problems early on is important in enhancing the healthy development of the fetus. Regular
prenatal checkups are crucial for prospective mothers. During prenatal visits, prospective
mothers are advised about good nutrition, the importance of taking vitamin supplements,
and are examined for possible concerns. It is important that prospective mothers engage in
good nutrition and maintain regular exercise and tend to their emotional well-being. The
mother's age can also have an influence on fetal development. Some teenage mothers may
face a higher rate of birth problems due to factors other than age such as lack of prenatal
care, and poor nutrition, stress, and health problems correlated with low socio-economic
backgrounds. Women who are waiting until their thirties or forties to have children face a
greater risk of infertility, miscarriage, and babies born with chromosomal abnormalities.
Rh factor incompatibility can also be a cause of serious problems for a mother's second baby
and subsequent babies. When the mother's Rh factor is negative and the father's Rh factor
is positive, the baby may inherit the father's Rh factor. Due to the Rh factor incompatibility,
the mother forms antibodies against the fetus and reacts to the baby's blood as if there were
a foreign substance present and "attacks" the baby's blood. This "attack" destroys the
baby's red blood cells affecting the baby's ability to carry oxygen in his/her blood which can
result in the death of the fetus. Typically, this does not happen with the first baby due to the
length of time it takes for antibodies to form. However, with subsequent pregnancies, the
mother's antibodies can attack the blood cells of the fetus by way of the placenta. Rh factor
or Rh incompatibility can cause congenital anomalies (e.g., hearing loss and/or stillbirth).
There are currently two types of treatment for Rh incompatibility. They are the use of the
serum, RhoGAM for the mother and blood transfusions of the fetus in the uterus if
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necessary.
Child abuse/Neglect
According to Beck (1999), child abuse can occur in the following ways:
• Physical abuse - abuse that results in pain, cuts, welts, bruises, burns, broken bones, and
other physical injuries.
• Sexual abuse - exposure to sexual comments, fondling, intercourse, and other types of
exploitation.
• Physical neglect - conditions where children's basic needs of food, clothing, shelter, or
supervision are not met.
• Psychological abuse - actions that humiliate or terrorize children that results in
damaging their emotional, social, or cognitive functioning. (p. 399).
Child abuse can result in diminished self-esteem, social skills, and self-regulatory behaviors.
According to Cicchetti and Toth (1998), maltreated children show difficulties in peer
interaction and encounter learning problems, in addition to exhibiting severe depression and
delinquency. Overall, child abuse can impede social/emotional well-being,
attachment/bonding, cognitive/psychological development, and adaptive skills.
Heredity
Genetic disorders inhibit child development. Some of the disorders can be detected prior to
birth through amniocentesis (obtaining a sampling of amniotic fluid) and chronic villus
biopsy (obtaining a sampling of the outer membrane tissue of the amniotic sac). Some
genetic disorders can be identified in newborns with laboratory blood samples. Some
developmental problems can be traced to genes and chromosomes, such as Down
syndrome, spina bifida, vision impairment, hearing loss, cystic fibrosis, Tay-Sachs disease,
and Fragile X syndrome. Some of these hereditary problems can lead to mental retardation,
chronic health problems, or physical malformations. Certain heredity factors greatly affect
early physical, motor, speech/language, sensory perception, and cognitive development.
Nutrition
Poor nutrition can affect fetal development as well as child development. Prenatally, the
fetus depends totally on the mother to receive nutrition through the placenta. If a mother is
malnourished it is likely the baby will be born malnourished, or worse, be born prematurely,
suffer from low birth weight, or die soon after birth (Susser & Stein, 1994). Upon birth,
malnourished infants' immune system development is suppressed resulting in frequent
respiratory illnesses (Chandra, 1991). Many are irritable and unresponsive to stimulation
around them.
Effect of Birth Complications/Trauma
Numerous things can go wrong during the labor and delivery. Trauma can be due to oxygen
deprivation, preterm birth (prematurity), low-birth weight, and post-term birth.
Oxygen Deprivation
Oxygen deprivation, or anoxia, prior to or during the birth process can be a result of
premature separation of the placenta or the cord being wrapped around the babies' neck
causing inadequate oxygen supply. Deprivation of oxygen can result in a child having
cerebral palsy - a term used for a variety of problems resulting from brain damage before,
during, or just after birth. Newborns sometimes fail to start breathing immediately after
being born. Risk of brain damage can result from delayed breathing of more than 3 minutes
at birth. The effect of oxygen deprivation generally causes physical disabilities that tend to
be permanent, as well as blindness, hearing impairments, intellectual and motor delays
throughout early life. If oxygen deprivation were severe, problems will persist beyond early
childhood.
Low Birth Weight
Birth weight is a good predictor of infant survival and healthy development. For a full-term
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pregnancy (40 weeks), a healthy average weight is between 5 pounds 11 ½ ounces and 8
pounds 5 ¾ ounces. Infants may have low birth weight because of prematurity and/or
intrauterine growth retardation due to genetic makeup or an unfavorable uterine
environment. Low birth weight infants face health complications: immature lungs and
breathing, mild/severe cognition problems, cerebral palsy, delayed speech, and sensory
impairments (visual and auditory). Infants weighing less than 2 ½ pounds at birth
experience more extreme long-term difficulties that are sometimes not overcome. Infants
weighing less than 2 ½ pounds need intensive neonatal care for survival and typically require
lengthy stays in the hospital.
Preterm Birth (Prematurity)
Preterm infants are born several
weeks before completing 37 weeks of
gestation, regardless of birth weight.
Approximately 10% of women deliver
prior to 38 weeks' gestation with 2%
delivering prior to 32 weeks. Various
factors are associated with premature
birth: teen pregnancies, poor prenatal
care, drug abuse, and maternal
trauma. Preterm infants commonly
have respiratory problems due to
underdeveloped lungs. Brain hemorrhaging is also a complication of preterm birth along with
immature immune systems. Deficits in motor coordination, inattentiveness, over activeness,
and frequent illnesses are some of the difficulties that continue into the primary years
(McCormick, Gortmaker, & Sobol, 1990).
Preterm babies are sometimes irritable, unresponsive, and suck poorly. Because of these
problems, some parents become less sensitive and responsive in caring for them. Preterm
babies are less often cuddled, touched, and talked to, especially those who are very ill at
birth. According to Patteson and Barnard (1990), to receive a response from a baby who is
passive, mothers will be overly intrusive via interfering pokes and verbal commands.
Post-Term Birth
Post-term babies are infants that are born after 42 weeks. Approximately 5% of women
deliver after 42 weeks. One concern of post-term babies is due to the placenta no longer
functioning properly or the sharp drop in the amount of amniotic fluid. With the decrease of
amniotic fluid, the infant's movements in the uterus will squeeze the umbilical cord. In
addition, the fetus has grown larger during the extra weeks in the uterus which may cause
the baby to have trouble moving through the birth canal. Increased risk for oxygen
deprivation and head injuries occurs in post-term births.
Parental/Caregiver Influence and Interaction
According to Trawick-Smith (2003), "families of different cultures adopt unique methods for
playing with, carrying, feeding, comforting, educating, and socializing their children" (p.
449). Interactions between children and their parents and/or caregivers differ across
cultures. Some cultures respond to consoling infants by feeding them or quickly attending to
their needs whereas other cultures believe in not responding so quickly, socializing them to
become more independent at an early age. Interactions between parent and child are
largely influenced by cultural beliefs, values and personal experiences of one's own family
and family beliefs. According to Sanchez (1997), low-income Mexican American parents
favor dependence and attachment in their child rearing stressing reliance on family and
friends. Levine (1996) concludes that parents in poor communities generally emphasize
self-sufficiency helping their children become independent at an early age as evidence in
early weaning, walking, and toilet training.
carrying and holding" (p. 455). See table below for summary.
Activity #3
Infant Toddler Development Training Module 1
In this lesson, the focus was mainly on environmental, genetic, and maternal factors that
can affect child development. However, there has been a variety of recent research on
paternal factors that may affect prenatal child development. Research the internet and
identify three behaviors of a father that are believed to influence prenatal development.
Among other internet resources you may find to be of interest, check out Dads and Birth
Defects for this activity.
Activity #4
Reflect on two young children you currently serve or have knowledge of—similar ages but
different cultures if possible. What physical skills have you noticed emerging over the past
few weeks? Have their likes and dislikes changed recently? How have their vocalizations
changed? How has their interest in their surroundings changed? Do you notice any
differences in the ways their mothers and fathers interact with them? Do you notice any
cultural or even generational differences that might make the parents' interactions different
from those of the caregiver? How much influence do you see child rearing practices and
culture having on the child's development?
Lesson 3 Highlights
This lesson focused on the various factors that can influence a child's development. Some
factors can be prevented, others not. It is important for the ITDS to be knowledgeable of
the various factors and how those factors can interfere with typical child development. This
lesson focused on prenatal, perinatal, and postnatal conditions and parental influences that
can influence a child's maturation and learning abilities.
References
• Berk, L. E. (1999). Infants and children: Prenatal through middle childhood. Boston: Allyn
and Bacon.
• Chandra, R. K. (1991). Interactions between early nutrition and the immune system. In
Ciba Foundation Symposium No. 156 (pp. 77-92).
• Chavkin, W. (1995). Substance abuse in pregnancy. In B. P. Sachs, R. Beard, E.
Papiernik, & C. Russel (Eds.) Reproductive health care for women and babies (pp. 305-
321). New York: Oxford University Press.
• Cicchetti, D., & Toth, S. L. (1998a). Perspectives on research and practice in
developmental psychology. In I. E. Sigel & K A. Renninger (Eds.), Handbook of child
psychology: Vol. 4.
• Child psychology in practice (5th ed., pp. 479-582). New York: Wiley.
• Colburn, N. (1996, September). Fetal alcohol babies face life of problems. Washington
Post (p. 5).
• Diaz, J. (1997). How drugs influence behavior: A neuro-behavioral approach. Upper Saddle
River, NJ: Prentice Hall.
• Fergusson, D. M., Horwood, L. J., & Lynskey, M. T. (1993). Maternal smoking before and
after pregnancy: Behavioral outcomes in middle childhood. Pediatrics, 92, 815-822.
• Levine, R. A. (1996). Childcare and culture: Lessons from Africa. Cambridge: Cambridge
University Press.
• McCormick, M. C., Gortmaker, S. L., & Sobol, A. M. (1990). Very low birth weight
children: Behavior problems and school difficulty in a national sample. Journal of
Pediatrics, 117, 687-693.
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• Nevin, M. M. (1988). Dormant dangers of DES. The Canadian Nurse, 84, 17-19.
• Patteson, D. M., & Barnard, K. E. (1990). Parenting of low-birth-weight infants: A review of
issues and interventions. Infant Mental Health Journal, 11, 37-56.
• Putsch, R., SenGupta, I., Sampson, A., & Tervalon, M. (2003, October). Reflections on the
CLAS Standards: Best practices, innovations & horizons. Retrieved June 22, 2004.
• Sanchez, Y. M. (1997). Families of Mexican origin. In M. K. DeGenova (Ed.), Families
in cultural context: Strengths and challenges in diversity (pp. 61-84). Mountain
View, CA: Mayfield.
• Susser, M., & Stein, Z. (1994). Timing in prenatal nutrition: A reprise of the Dutch Famine
Study. Nutritional Reviews, 52, 84-94.
• Trawick-Smith, J. (2003). Early childhood development: A multicultural perspective.
Columbus, OH: Prentice Hall.
• Trawick-Smith, J. (2003). Early childhood development: A multicultural perspective.
Columbus, OH: Prentice Hall. Table 18-1 "Cultural universals and variations in parent-
child interactions" p. 455.
• Wilcox, J., Baird, D. D., & Weinberg, C. R. (1995). Fertility in men exposed to prenatally to
diethylstilbestrol. New England Journal of Medicine, 332, 1411-1416.
Websites
• Kids Count main website for Activity #2
• Key facts for Florida Kids Count for Activity #2
• Summary Profile for Florida Kids Count for Activity #2
• Income and Poverty for Florida Kids Count for Activity #2
Lesson 4
Introduction
Previous lessons concentrated on typical child development
and factors affecting such. This lesson will focus on identifying
various developmental disabilities and disorders that are
prevalent from birth to three years of age, addressing their
causes and symptoms.
Learning Objectives
Upon completion of this lesson, you will be able to:
Resources
The following resources are necessary for the completion of this lesson. Learners may wish
to access and print a hard copy of the resources prior to beginning the lesson and for future
reference. Some resource documents can be found in the Resource Bank. Others are
available online.
• March of Dimes
Key Words
Definitions of key words are found in the glossary.
• Folic Acid
• Decibel level (dB)
Some of the more prevalent developmental disabilities and disorders with children birth to
three are listed below under specific categories. This is by no means an all-inclusive list of
developmental disabilities and disorders that may be seen in a childbirth to three years of
age but should be used as a guide for various disorders prevalent today.
Prevalent Developmental Disabilities and Disorders
• Chromosomal Abnormalities
o Down syndrome
o Fragile X syndrome
• Neuromotor Impairments
o Traumatic brain injury
o Cerebral palsy
o Seizure disorders
o Spina bifida
• Degenerative Diseases
o Muscular dystrophy
• Orthopedic and Musculosketal Disorders
o Scoliosis
o Juvenile Rheumatoid arthritis
• Sensory Impairments
o Visual impairments
o Hearing Impairments
• Major health impairments
o Congenital heart defects
o Sickle cell disease
o Asthma
o Cystic fibrosis
• Infectious diseases
o AIDS/HIV
o Meningitis
o Encephalitis
o Hepatitis B
• Fetal Alcohol Syndrome
• Autism
Causes of Prevalent Developmental Disabilities and Disorders
Below are brief summaries of some of the known causes of prevalent developmental
disabilities and disorders. As with many disorders, some causes are still unknown.
Infant Toddler Development Training Module 1
Chromosomal Abnormalities
Down syndrome, sometimes called trisomy 21, is one example of a condition caused by
chromosomal abnormalities. Children with Down syndrome receive three number 21
chromosomes instead of two. In addition to other concerns, children with Down syndrome
are at high risk for vision and/or hearing impairments that will further affect their
development. Down syndrome occurs in about 1 in 600 to 800 live births. Incidence of
Down syndrome increases with the age of the mother, 1 incidence per 100 live births for
women 40 years of age or older.
Common neuromotor disorders also include seizure disorders. The term epilepsy is generally
used to describe chronic seizure disorders. Depending on the type of seizures,
characteristics of seizures can be described as an involuntary disruption in the central
nervous system that comes on suddenly and can sometimes cause an altered state of
consciousness, motor activity, sensory phenomena, or inappropriate behavior that lasts a
limited, but varied amount of time (Berkow, 1992; Holmes, 1992). Seizures can be caused
by various means: drug overdose, infections, high temperature, and chemical imbalances.
Seizures that occur over a long-term are a disorder. Seizures can occur for unknown
reasons, called idiopathic which can result from a brain insult or more metabolic
abnormalities (Berkow). Seizures that have an underlying cause, called symptomatic usually
involves brain abnormalities, such as tumors, aneurysms, or abnormalities in the blood
Infant Toddler Development Training Module 1
system or brain structure which may occur during fetal development or even later. On many
occasions, seizures occur more frequently in individuals who have disabilities such as
cerebral palsy, TBI, and mental retardation. Seizure disorders occur in 0.5 percent of the
general population.
Spina bifida is a spinal cord defect that often results in paralysis and sensory loss and is one
of the most serious neurodevelopmental disorders. Spina bifida occurs when the vertebral
column has a defective closure. Several environmental causes have been suggested as
possible causes of spina bifida: lack of folic acid and other vitamins and maternal illnesses
and medication use (Morbidity and Mortality Weekly Report, 1992; Sandford, Kissling, &
Joubert, 1992; Rosa, 1991). The incidence of spina bifida is about 1 in every 1,000 live
births making it one of the most common developmental defects of the nervous system.
Introduction of folic acid can reduce the incidence of spina bifida by 50%.
Degenerative Diseases
Muscular dystrophy is a disease that is genetically based and characterized by progressive
muscle and skeletal weakness and degeneration (Sher, 1990). Some forms of muscular
dystrophy are sex-linked (defective gene carried by mothers and passed on to sons) or
autosomal-dominantly linked (defective gene carried by mother or father transmitted to son
or daughter) or autosomal-recessively linked (defective gene carried by both the mother
and father and transmitted to son or daughter) (Heller, Alberto, Forney, & Schwartzman,
1996). The most common as well as most severe of the muscular dystrophies is Duchenne
Muscular Dystrophy (DMD) which manifests prior to age 6. Incidence of DMD is about 1 per
5,000 male live births.
Orthopedic and Musculosketal Disorders
Scoliosis is a sideways curvature of the spine. Scoliosis can either be nonstructural or
structural curvatures. Nonstructural curvatures are generally due to secondary causes that
are not permanent such as children who have legs that are different lengths or who have a
herniated disk, both of which when corrected will correct the curvature of the spine.
Structural curvatures of the spine are permanent. Causes range from unknown to genetic.
Congenital causes are present at birth and tend to result in vertebrae that are malformed.
Other causes of scoliosis result from central nervous system and muscular diseases such as
cerebral palsy and muscular dystrophy. Additional causes may include trauma, malnutrition,
bone diseases, and tumors.
Juvenile rheumatoid arthritis is joint inflammation that is chronic in which onset is prior to
age 16. Specific causes of juvenile rheumatoid arthritis are unknown; however, several
causes have been proposed. One thought is that the body's antibodies attack normal cells
and cause an autoimmune response. Another hypothesis is the presence of a microorganism
infection causing inflammation in the joints. It is also thought that individuals with juvenile
rheumatoid arthritis are genetically predisposed to the disease (Scholz & Albert, 1993)
Sensory Impairments
Children experience the world primarily through their vision and hearing. Deficits in either or
both senses result in a barrier to effectively experiencing the world. When these barriers are
addressed through early intervention appropriately (e.g., amplification, sign language,
Infant Toddler Development Training Module 1
guided experiences, lenses) it is possible for the child with a hearing or vision impairment
who has no other disability to develop at a rate like typically developing peers.
The incidence of permanent hearing loss in infants is 3/1000. Ear infections causing
fluctuating conductive hearing loss are very common in infants and toddlers resulting in
approximately 90% of children under the age of 3 having had at least one episode of ear
infection, or otitis media.
Meningitis is an infection of the meninges (covering) that surrounds the brain and spinal
cord (Blackman, 1990). Meningitis can be caused by a bacterial (seriously threatening) or
viral (less threatening) infection. Newborn children can acquire meningitis during the birth
process encountering organisms from the mother's intestinal tract and/or vagina. For
Infant Toddler Development Training Module 1
children two months to three years of age, meningitis can be caused by one of three
organisms: meningococcus, pneumococcus, or haemophilus influenzae. The incidence of
meningitis in full term infants is 0.13 per 1,000 live births, increasing to 2.24 for preterm
infants. Meningitis is the second highest cause of hearing loss in young children.
Encephalitis occurs when the brain is inflamed and is generally caused by a virus or
infection such as measles or mumps. Such viruses can be spread from person to person or
from mosquitoes or ticks and or rabies. Incidence of encephalitis is hard to determine due to
diagnostic difficulties that lead to incidences being unreported.
Hepatitis B is an inflammation of the liver and is caused by the Hepatitis B virus. Even
though there are several types of hepatitis, Hepatitis B is the most prevalent in children with
disabilities. Children who have hemophilia, are in accidents or who undergo surgical
procedures and require blood are at high risk. According to Bauer and Shea (1986), special
education teachers are at high risk of contracting Hepatitis B
Cytomegalovirus (CMV) is a member of the herpes virus family and usually causes no
problems for healthy individuals. However, about 7 to 10% of unborn children of women
who get CMV for the first time or have a reactivation of infection during pregnancy will have
symptoms at birth or will develop disabilities including hearing loss, mental retardation,
small head size, and delays in development. Infants can be infected with CMV during or
soon after delivery. Infection can occur as the infant progresses through the birth canal of
an infected mother, consumes breast milk from a mother who has the virus, or receives a
blood transfusion contaminated with CMV.
Fetal Alcohol Syndrome (FAS)
A spectrum of developmental and physical effects on the fetus has been associated with
maternal ingestion of alcohol during pregnancy. Fetal Alcohol Syndrome (FAS) incidence
rates for FAS range from 3 to 6 cases per 1,000 live births. FAS is one of the most prevalent
known causes of mental retardation and the most preventable.
Autism
Autism is a pervasive developmental disorder characterized by impairments in at least one
of the following areas: social relatedness, communication, and play skills with onset prior to
age three. Autism is more prevalent in males. There is no known unique cause of autism.
Autism is thought to be caused by brain dysfunction during gestation although most children
with autism do not have a brain injury detectable by medical assessments. There are some
medical indications that heredity can be a factor in autism. Also, exposure to viruses such as
rubella and cytolomegalo virus, infections such as meningitis, and exposure to toxins and
pollutants have also been thought to cause autism. The identification of children with autism
has drastically increased over the past few years. In 1998, Florida recorded a 573% increase
as reported in the Miami Herald in October,1999.
Characteristics of Prevalent Developmental Disabilities and Disorders
Disability/Disorder Characteristics
Congenital heart defect Hypotonia Slanted eyes Protruding tongue Extra fold at
inner corners of eyes Short broad hands with single palmar crease small
Down Syndrome
stature Hearing Impairment Vision Impairment Cognitive Delays Language
delays
Large head Prominent ears Prominent forehead Cognitive delays Language
Fragile X Syndrome
delays
Infant Toddler Development Training Module 1
• Certain areas may appear to be delayed yet the child continues to develop typically
in other areas
• Variations in children's achievements exist as well as uneven maturation and
constantly changing conditions in the child's environment.
• Parenting patterns differ significantly across cultures as well as perception of
developmental milestones.
• Delays may not be immediately noticed (e.g., vision/hearing loss).
Infant Toddler Development Training Module 1
• Health problems that can affect children's performance are sometimes intermittent
(e.g., ear infections)
At any time, the parent or caregiver feels or perceives a child is experiencing a
developmental problem, help should be sought. It is possible that the child would benefit
from a developmental screening to determine potential delays or problems. Sometimes just
consulting and discussing concerns with an ITDS can ease the parents or caregivers mind or
validate the need for some type of early intervention.
Activity #1
This lesson addressed various developmental disorders and disabilities that can be present in
children from birth to age 3. Reflect on the various types of disorders and disabilities you
have seen in the children for whom you have provided services or have knowledge of in case
you are not currently working in the field. In your experiences or personal knowledge, which
of the developmental disorders and disabilities addressed in this lesson are the most
prevalent? Of the disorders/disabilities you have found to be most prevalent, were they more
genetic in nature or have other causes? In your experiences as an ITDS or based on your
personal knowledge, do you see a trend or increase in some of these disorders/ disabilities?
If so, what do you feel is the reason for the trend/increase?
Activity #2
Reflect on the following scenario:
Sarah is a twelve-month-old who has just begun to crawl. She is beginning to pull herself up
to stand but has not taken steps independently. When she sees something, she wants she
shows you by pointing and grunting. She has not begun to feed herself nor does she hold
her own cup/bottle. When smiled at, she does not return the smile. She has begun to
babble but has not begun to make simple sounds.
According to the information presented above, identify some warning signs of possible
developmental delays. In what areas does Sarah exhibit appropriate developmental
milestones based on her age? Did you have any problems determining possible delays? If
so, why?
Activity #3
As an ITDS, have you had an occasion or two where the parent or caregiver asked for your
opinion concerning their child's development? Did you have difficulty addressing their
concerns or did you feel comfortable in sharing your knowledge of child development? What
are some possible reasons, other than those items addressed in the lesson above, for
difficulties in identifying possible delays in child development? A good resource to assist
families in understanding specific disabilities is March of Dimes.
Lesson 4 Highlights
This lesson addressed prevalent disabilities and disorders that can affect a child's
development. Causes and symptoms were presented for each disability and/or disorder.
Developmental warning signs were identified for various age levels to assist in determining
when a possible problem exists. In addition, several factors were addressed that complicate
the determination of a delay or developmental deviation.
Infant Toddler Development Training Module 1
References
• Allen, K. E., & Marotz, L. R. (1999). Developmental profiles: Pre-birth through eight.
Albany, NY: Delmar Publishers.
• Bagamato, S., & Feldman, H. (1989). Closed head injury in infants and children.
Infants and Young Children, 4, 1-9.
• Bauer, A., & Shea, T.M. (1986). Hepatitis B: An occupational hazard for special
educators. Journal of the Association for Persons with Severe Handicaps, 11, 171-175.
• Behrman, R. E. (1992). Nelson textbook of pediatrics. Philadelphia: W. B. Saunders.
• Berkow, R. (1992). The Merck manual of diagnosis and therapy. Rahway, NJ: Merck,
Sharp & Dohme Research Laboratories.
• Blackman, J. A. (1990). Medical aspects of developmental disabilities in children
birth to three. Rockville, MD: Aspen Publishers.
• Bleck, E., & Nagel, D. (1982). Physically handicapped children: A medical atlas for
teachers. Orlando: Grune & Stratton.
• Caldwell, M. B., & Rogers, M. F. (1991). Epidemiology of pediatric HIV infection.
Pediatric Clinics of North America, 38(1), 1-16.
• Heller, K. W., Alberto, P. A., Forney, P. E., & Schwartzman, M. N. (1996).
Understanding physical, sensory, and health impairments. Pacific Grove, CA:
Brookes/Cole.
• Holmes, G. L. (1992). The epilepsies. In R. B. David (Ed.), Pediatric neurology.
Norwalk, CT: Appleton & Lange.
• Morbidity and Mortality Weekly Report (1992). Recommendations for the use of folic
acid to reduce the number of cases of spina bifida and other neural tube defects.
Morbidity and Mortality Weekly Report, 41, 1-7.
• Nelson, K. B., & Ellenberg, J. H. (1986). Antecedents of cerebral palsy: Multivariate
analysis of risk. The New England Journal of Medicine, 315, 81-86.
• Sanford, M. K., Kissling, G. E., & Joubert, P. E. (1992). Neural tube defect etiology:
new evidence concerning maternal hyperthermia, health, and diet. Developmental
Medicine and Child Neurology, 34, 661-675.
• Scholz, S., & Albert, E. D. (1993). Immunogenetic aspects of juvenile chronic
arthritis. Clinical and Experimental Rheumatology, 11(9), S37-S41.
• Sher, J. (1990). Muscular dystrophy. In M. Adachi & J. H. Sher (Eds), neuromuscular
disease. New York: Igadu-Shoin.
Websites
• March of Dimes
Infant Toddler Development Training Module 1
Lesson 5
Introduction
In previous lessons, typical child development milestones were addressed. Prevalent
developmental disorders and disabilities that occur from birth to 3 years of age have also been
discussed. This lesson will identify the affect certain developmental disorders and disabilities
have on child development and on the family structure. Adaptations available for children with
developmental delays and disorders and the effect on child development will also be
presented.
Learning Objectives
Upon completion of this lesson, you will be able to:
• Explain the effect the most prevalent developmental disabilities and disorders have
on child development (e.g., sensory impairments, chronic illness, genetic syndromes,
and cognitive delays)
• Explain the effect the most prevalent developmental disabilities and disorders have
on the child's family
• Explain how abnormal development in one area may or may not interfere with the
development and mastery of skills in other areas
• Explain how individuals with the same impairment can be affected differently
• Explain the effect multiple disabilities can have on child development (i.e., cerebral
palsy/hearing impairment/low vision)
• Identify adaptations that are available for children with developmental
delays/disorders (e.g., nutritional assistive devices, surveillance devices, respiratory
technology assistance) and the possible (positive) effect on child development
Resources
The following resources are necessary for the completion of this lesson. Learners may wish
to access and print a hard copy of the resources prior to beginning the lesson and for future
reference. Some resource documents can be found in the Resource Bank. Others are
available online.
• Views from our Shoes
Key Words
Definitions of key words are found in the glossary.
• Nutritional assistive devices
• Surveillance devices
Even though the previous lesson in this module addressed the causes and symptoms
developmental delays and disorders have on child development, it is important to review
some of the major effects. A brief listing of the effect which various impairments have on
child development is listed below.
Effect of Sensory Impairments on Child Development
• Deficits in identifying the source of a sound
• Difficulty in listening in a noisy environment
• Language delays
• Speech delays
• Lack of coordination
• Decreased muscle tone leading to delays in gross motor skills
• Delayed fine motor skills
• Delays in self-feeding
• Delayed social interaction and development of play
Effect of Chronic Illness on Child Development
• Delayed growth
Infant Toddler Development Training Module 1
• Lack of stamina
• Loss of strength
• Malnutrition
• Respiratory problems
• Socialization concerns
• Diminished immune system
Effect of Genetic Syndromes on Child Development
• Language delays
• Maturation delays
• Cognitive deficiencies
• Infertility
Effect of Cognitive Delays on Child Development
• Decreased learning abilities
• Problems in working memory
• Distractibility
• Poor judgment
• Deficiencies in processing information
• Inflexibility
• Inability of brain to control muscle function
Effect of Motor Deficits on Child Development
• Difficulty in muscle control and coordination
• Lack of bladder and bowel control
• Loss of sense of balance
• Digression of motor skills
• Loss of equilibrium
• Disordered interpretation of tactile stimulation (tactile defensiveness)
(Batshaw, 1997; Heller, Alberto, Forney, & Schwartzman, 1996)
Effect of Developmental Disabilities and Disorders on the Family
This module has generally focused on the effect of developmental disabilities and disorders
on child development. Equally important is the effect developmental disabilities and
disorders have on the family structure. How the family copes with the daily stress and needs
of its family members can influence the outcome of the child (Miller, 1994; Saddler,
Hillman, & Benjamins, 1993; Snowdown, Cameron, & Dunham, 1994). Positive, negative,
and neutral effects generally depend on the nature of the family. According to Turnbull and
Turnbull (1997), successful families have a reasonable balance of affection, financial
independence, care, recreation, and education and consistently show the value of caring,
affection, and unconditional love while raising children. It is important for the Infant Toddler
Developmental Specialist (ITDS) to recognize the family's strengths and empower the family
to meet the needs of the child and family. Being respectful of cultural differences and
religious beliefs is also equally important. One of the first situations that a family encounters
is when the family first learns that their child has a developmental delay, disorder, or
disability. Coping with this news introduces a whole new dimension to the family structure.
Not only is the family faced with the situation of readjusting expectations, but there are also
other factors now present: family members' and friends' need and social isolation issues,
time, and physical demands, and financial, transportation, and medical issues.
Family issues
Needs of family members often go unnoticed or unfulfilled due to the
heavy demand of meeting basic needs of the child with the disability
in the household. Providing quality time for all family members, even
though important, is sometimes impossible. Family members may
also experience bouts of depression. Families can be under
tremendous stress as well as the physical strain they encounter in
making appointments and providing quality childcare. Depression can
Infant Toddler Development Training Module 1
As the parents react and respond to the news their child has a developmental delay,
disorder, or disability, extended family members and/or friends may be experiencing issues.
Grandparents may not understand the "diagnosis" or may even place blame on one of the
parents. Friends of the family may feel awkward or uncomfortable in the presence of the
child or lack words for consolation and thereby stay away. Babysitters may also be hard to
find possibly due to the need for a more skilled professional sitter. All these situations can
lead to isolation for the family. Even if family members want to maintain their social life,
time and specialized needs of the child may prohibit that from happening.
It is quite understandable how the needs of siblings may become overlooked; especially at
the onset of discovering a child has a special need. It is important to note that overall,
children have mixed feelings about their siblings with disabilities (Knott, Lewis, & Williams,
1995). Some children may feel guilty that they are able-bodied, and their sibling isn't, some
may worry that they may contract the disability, and others may feel less loved or cared for
due to the time and care required for the child with the disability. It is important that the
parents understand the importance of balancing their efforts so as not to overlook the needs
of the unaffected siblings. Many siblings experience positive rewards from living with a
brother or sister with a disability and become more nurturing, understanding, and caring
individuals.
Time/physical demands
The demands placed on a family of a child with special needs can be overwhelming. The
physical demands as well as time demands placed on families can exhaust a family's well-
being. Physical demands may entail lifting and positioning a child with motor deficits and/or
providing daily living skills, just to name a few situations. The necessity of scheduling
therapies, medical interventions and services can place time restraints on the family
structure. The physical and time demands can interfere with parents' jobs which can lead to
added stress on the family system. Finding appropriate and quality childcare can also be
taxing on the family and may result in one caregiver staying home to provide the necessary
childcare.
Financial issues
Financial issues can have a tremendous effect on families. Sometimes, just life-saving
medical intervention can exhaust a family's finances. Medical services as well as
transportation and home renovation needs may also influence a family's financial resources
not to mention the issues already addressed above. Much medical technology assistance can
be very expensive, depending on the type of equipment needed and the severity of the
disability. Therefore, financial issues need to be addressed. As an ITDS, you might be the
resource person the family turns to for advice on financing and securing technological
assistance. Resources for the family to assist in providing such technology may be crucial for
the child's well-being and life.
Transportation is another concern for families of children with disabilities. Many times,
alternative or modified transportation is needed (i.e., wheelchair modified vans). As an
ITDS, it is important to have knowledge about available resources for the
parents/caregivers that may need information concerning public transportation alternatives
and transportation modifications. Due to transportation concerns, it may also be necessary
to adjust therapy schedules and medical services accordingly to accommodate the
transportation needs of the family/caregiver.
different emotions and concerns. Notice how different the two excerpts are, paying close
attention to the age and gender of the two authors and the exceptionality of the sibling.
Think about how these emotions and concerns may change as the child without special
needs matures.
Activity #2
An online forum is provided on the siblings of autism website. There, children of various
ages express their feelings, ask questions, and respond to other writers about their
experiences as siblings of children with special needs. It is interesting to read the thoughts
and responses. A recent entry and response in the forum are paraphrased below.
Forum Entry:
Hi:
My name is Carey, and I am seven. I love my little brother very much. He is 2 ½ years old
and his name is Dixon. We have played together a lot this summer and had fun. When
Dixon leaves to go to his playgroup with our mom, I feel lonely. I am the only one in the
family who can really understand him. My Mom gets really stressed with him sometimes, I
can tell.
I like Dixon because he is silly and funny. He likes Thomas the tank engine trains and really
likes to line things up. Sometimes he is really aggravating like yesterday when he let my
balloon go into the air because he wanted to see it float away. I was sad and mad about it.
But now I really don't care. Even though Dixon has Autism, I am glad he is my brother.
Carey
Response to Entry:
After reading the Forum entry, reflect on the following questions. How do you suppose
Carey's experiences growing up have been different having a sibling with autism? What
effect do you see on her future goals and concerns compared to other peers her age? How
might Carey's life have been different had her brother not had autism? Do you see this
impact as positive or negative? How might Carey's attitudes change as she gets older?
As a follow-up to this activity and as time allows, you may want to go to the website to read
entries in the forum and respond to some that are of interest.
Activity #3
In this lesson, we addressed medical assistive devices that are important to many children
to sustain life and promote development. There are numerous other assistive devices, not
related medically, which can have a great effect on children with special needs such as
communication devices, hearing aids, visual assistive devices, etc. Conduct an internet
search to locate various types of assistive devices that can assist children with the following
tasks: hearing, vision, pre-writing, communicating, eating, and mobility. Notice the low-tech
items (inexpensive) versus high tech items (expensive). Reflect on some of these items and
the importance of children's use in gaining independence and achieving success in everyday
situations. You might want to develop a resource file on some of these items for future use
with your families. Two interesting websites to search are:
• Ablenet
• Assistive Technologies
Activity #4
Read Chapter 6, Recommended Practices in Technology Applications in DEC Recommended
Practices in Early Intervention/Early Childhood Special Education by Sandall, McLean, Smith
(Eds.) (2000). Pay close attention to pages 59-61. Look at the following two sections to
evaluate whether they match your belief and the practice in your work setting:
• Families and professionals collaborate in planning and implementing the use of
assistive technology.
• Families and professionals use technology to access information and support.
Based on your reading, list 3 ideas of how families are involved with assistive technology
according to Recommended Practices.
Infant Toddler Development Training Module 1
Lesson 5 Highlights
This last lesson addressed the effect developmental delays, disorders, and disabilities have
on the child, the family, and others. Multiple disabilities may have different effects on
children who have the same types of multiple disabilities due to the individual child's
situation. Several types of assistive devices were discussed that can sustain and/or enhance
a child's life.
References
• Batshaw, M. L. (1997). Children with disabilities. Baltimore, MD: Paul H. Brookes
Publishing.
• Duncan, B. W., Howell, L. J., deLorimier, A. A., et al. (1992). Tracheostomy in
children with emphasis on home care. Journal of Pediatric Surgery, 27, 432-435.
• Heller, K. W., Alberto, P. A., Forney, P. E., & Schwartzman, M. N. (1996).
Understanding physical, sensory, and health impairments. Pacific Grove, CA:
Brookes/Cole.
• Knott, F., Lewis, C., & Williams, T. (1995). Sibling interaction of children with learning
disabilities: A comparison of autism and Down's syndrome. Journal of Child Psychology
and Psychiatry and Allied Disciplines, 36, 965-976.
• Miller, N. B. (1994). Nobody's perfect: Living and growing with children who have
special needs. Baltimore: Paul H. Brookes.
• Poets, C. F., & Southall, D. P. (1994). Noninvasive monitoring of oxygenation in
infants and children: Practical considerations and areas of concern. Pediatrics, 93,
737-746.
• Saddler, A. L., Hillman, S. B., & Benjamins, D. (1993). The influence of disabling
condition visibility on family functioning. Journal of Pediatric Psychology, 18(4), 425-
439.
• Silvestri, J. M., Weese-Mayer, D. E., & Kenny, A. S. (1994). Prolonged
cardiorespiratory monitoring of children more than twelve months of age:
Characterization of events and approach to discontinuation. Journal of
Pediatrics, 125, 51-56.
• Snowdown, A. W., Cameron, S., & Dunham, K. (1994). Relationships between
stress, coping resources, and satisfaction with family functioning in families of
children with disabilities. Canadian Journal of Nursing Research, 26(3), 63-76.
• Turnbull, A. P., & Turnbull, H. R. III. (1997). Families, professionals, and
exceptionalities: A special partnership. Columbus, OH: Merrill/Prentice Hall.