2017 - Updates & Insights Blog
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Hope for a Rare Disease Through TCGA: My Perspective as a Caregiver, Patient Advocate, and Physician
The founder of the Melanoma Research Foundation's Community United for Research and Education of Ocular Melanoma (CURE OM) initiative describes her journey from having a loved one diagnosed with a rare disease, to forming a patient advocacy group, to teaming up with The Cancer Genome Atlas in a collaborative research effort.
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