Il racconto di Alessandra
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Updated
Apr 29, 2026 - HTML
Il racconto di Alessandra
This project collects and analyzes public Reddit posts from r/rarediseases to study patient and caregiver experiences related to rare diseases, including diagnosis status, symptoms, diagnostic journeys, treatment, and psychosocial impact.
Add a description, image, and links to the patient-narratives topic page so that developers can more easily learn about it.
To associate your repository with the patient-narratives topic, visit your repo's landing page and select "manage topics."